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The Lived Experienced Café
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Most Recent Post
Moderator(s): CrossRoads

Home Care by CrossRoads

Share your advice and observations about the care and support received at home....
Replies: 7
Views: 3102
7
3102
2018-11-15 22:43:07 by fakedoc

Adult Day Programs? Share with the Ministry of Health and Long Term Care? by Sharon Osvald

On Wednesday, June 21st from 6:30 -8:00PM, we will be holding a province-wide online (type...
Replies: 3
Views: 1136
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1136
2018-11-15 22:42:24 by fakedoc

Changes with the SE Ontario Lived Experience Network by Sharon Osvald

Please note that at the end of July, 2018, Sharon Osvald will be moving into another posit...
Replies: 1
Views: 261
1
261
2018-11-15 22:40:14 by fakedoc

what do you do when a parent dies at home by lauriejones

My sisters and I are caring for our father AT HOME. He has Alzheimer Dementia. He told ...
Replies: 6
Views: 569
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569
2018-02-09 13:21:30 by Sharon Osvald

by Toronto condo realtor

...
Replies: 0
Views: 149
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149
2018-07-06 20:36:42 by Toronto condo realtor

Butterfly Project by Sharon Osvald

Check out the link to the video as well as the full article in the Toronto Star. (Cut and ...
Replies: 0
Views: 209
0
209
2018-06-25 11:00:40 by Sharon Osvald

Link to Alzheimer Society Public Education Campaign by Sharon Osvald

This link was shared in our April 2018 Provincial Live Chat. It is the Alzheimer Society A...
Replies: 0
Views: 198
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198
2018-05-14 11:23:37 by Sharon Osvald

Patient and Family Advisory Members needed for the SE LHIN by Sharon Osvald

The SE Local Health Integration Network is currently recruiting for a Patient and Family ...
Replies: 0
Views: 480
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480
2018-02-16 21:25:40 by Sharon Osvald

Family Physicians/Nurse Practitioners and Care Coordination by Sharon Osvald

Tonight's live chat comes to us from the South East Local Health Integration Network - if ...
Replies: 0
Views: 379
0
379
2018-02-06 17:03:20 by Sharon Osvald

Advance Planning Tips by Sharon Osvald

If you are looking for more information about advance planning, power of attorney, power o...
Replies: 0
Views: 566
0
566
2017-12-14 11:00:34 by Sharon Osvald

The Importance of Volunteers by Sharon Osvald

In our October 2017 Provincial Chat, participants shared about the importance of using vol...
Replies: 0
Views: 651
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651
2017-10-30 22:06:03 by Sharon Osvald

Dementia Friendly Communities by Sharon Osvald

In our October 2017 Provincial Live Chat, the topic of Dementia Friendly Communities was d...
Replies: 0
Views: 495
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495
2017-10-30 22:00:15 by Sharon Osvald

Geriatric Emergency Management Nurses by Sharon Osvald

In our October 2017 Provincial Live Chat, the topic of GEM Nurses came up. Has anyone expe...
Replies: 0
Views: 478
0
478
2017-10-30 21:56:24 by Sharon Osvald

Book to Read? by Sharon Osvald

I haven't read this book so can't make a personal recommendation but am always on the look...
Replies: 0
Views: 794
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794
2017-09-08 11:52:36 by Sharon Osvald

November Live Chat Topic by Sharon Osvald

If you are unable to attend the Lived Experience Cafe "Live (typed) Chat event this Tuesda...
Replies: 3
Views: 1629
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1629
2017-06-08 22:20:49 by Sharon Osvald

Behavioural Supports and Where to find help by Sharon Osvald

The following is an article shared by one of our Provincial Lived Experience Advisory Memb...
Replies: 0
Views: 936
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936
2017-04-25 12:35:14 by Sharon Osvald

The Best of the Best! by Sharon Osvald

Reflecting on your lived experience, what are the "best of the best" services, websites an...
Replies: 0
Views: 843
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843
2017-04-12 10:29:35 by Sharon Osvald

October's Live Chat Discussion on Caregiver Education/Supports by Sharon Osvald

If you weren't able to attend our live chat but still want to share your thoughts: This mo...
Replies: 2
Views: 2037
2
2037
2018-11-15 22:41:33 by fakedoc

Provincial Dementia Strategy Discussion Paper by Sharon Osvald

You now have an opportunity to share your input on the development of a provincial dementi...
Replies: 1
Views: 1234
1
1234
2016-09-27 09:52:25 by Sharon Osvald

Navigating Health Care by Sharon Osvald

This week in our provincial lived experience chat, we asked people to share their experien...
Replies: 2
Views: 1671
2
1671
2016-09-27 09:46:36 by Sharon Osvald

Turmeric for dementia by Anabell

Hi! Does Turmeric help in curing Dementia? I read an article ( http://www.best-alzheimers...
Replies: 4
Views: 1765
4
1765
2016-09-08 07:54:08 by Edward Charette

Possible dementia. by Anabell

Hi, My mother is 65 years old. I surmise that she has serious memory problem. I think she...
Replies: 3
Views: 1727
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1727
2016-09-08 07:57:45 by Edward Charette

Trust and Boundaries by Rosemunda

Trust and boundaries- what is your comfort level with paid care providers? Since last Sep...
Replies: 1
Views: 1701
1
1701
2016-05-05 15:21:18 by Sharon Osvald

What Has Your Experience Been Like with Emergency Rooms and Police? by Sharon Osvald

If you are unable to take part in May's live chat, we still want to hear - What has your e...
Replies: 1
Views: 1786
1
1786
2016-05-02 11:33:17 by Rosemunda

First Chat Back - Share you views... by Sharon Osvald

Our Next Live Chat will take place the first Tuesday night of the month on Tuesday, April ...
Replies: 0
Views: 1587
0
1587
2016-04-01 14:36:43 by Sharon Osvald

What IS working? by Sharon Osvald

If you missed our monthly live chat for May, you might want to consider sharing some of th...
Replies: 1
Views: 2027
1
2027
2016-04-01 14:33:02 by Sharon Osvald

Mobile Response Teams by Sharon Osvald

Hi all, I am looking for some stories and observations to pass on the Behavioural Support ...
Replies: 2
Views: 2385
2
2385
2016-04-01 14:21:40 by Sharon Osvald

Caregiver to Caregiver by CrossRoads

Pass on your best advice – what worked well for you as a caregiver. Share where did you ...
Replies: 10
Views: 4059
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4059
2016-04-01 14:13:36 by Sharon Osvald

Managing the Holidays - the guilt and the chaos by Sharon Osvald

This is a post shared on behalf of Lived Experience Member, Dawng: "Xmas is an emotiona...
Replies: 1
Views: 1940
1
1940
2015-12-04 12:35:29 by Sharon Osvald

The real life costs of the by Sharon Osvald

This post was shared by one of our lived experience cafe members , EJB: “There is a re...
Replies: 1
Views: 1760
1
1760
2015-12-04 12:31:08 by Sharon Osvald

Dementia and Depression Webinar by Sharon Osvald

Check out this video/webinar about Dementia and Depression - some great info and discussio...
Replies: 0
Views: 1800
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1800
2015-10-30 12:17:05 by Sharon Osvald

Provincial Patient Ombudsman Soon to Be Appointed by Sharon Osvald

Interesting Opportunity! Minister Hoskins announced this week that they are now seeking pu...
Replies: 0
Views: 1964
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1964
2015-07-10 09:27:37 by Sharon Osvald

Re: Respite and Health Care Tomorrow Survey Feedback by Sharon Osvald

This message is shared by request from Lived Experience Network member Rosemunda: Health...
Replies: 1
Views: 1927
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1927
2015-06-01 18:35:06 by Sharon Osvald

The Seven Deadly Emotions of Caregiving by Sharon Osvald

Here is a great article that helps us deal with some negative and very normal emotions th...
Replies: 0
Views: 2035
0
2035
2015-03-23 14:45:49 by Sharon Osvald

Feedback from Feb Chat on Transitions by Sharon Osvald

Submitted by Email from Lived Experience Network Member, Janine: How transitions can be i...
Replies: 0
Views: 1886
0
1886
2015-03-05 12:02:26 by Sharon Osvald

Financial Institution - the rest of the story by Sharon Osvald

Awhile back GingersHalo posted a discussion thread about her husband and his battle with a...
Replies: 2
Views: 2656
2
2656
2015-03-05 11:38:55 by Sharon Osvald

Financial - Warning Surrendered Life Insurance Policies by GingersHalo

My husband surrendered his life insurance policies in November,while I was out of the coun...
Replies: 3
Views: 2910
3
2910
2015-02-25 00:25:27 by Sharon Osvald

Memory Testing by Sharon Osvald

The Following Post was shared with me by email to be shared here by member Bluebird. So...
Replies: 5
Views: 2055
5
2055
2015-02-25 00:22:36 by Sharon Osvald

Dignity - Response to Findings - By Dawn G. by Sharon Osvald

- Dignity – not only for the patient but for the family. Nothing can prepare you for the ...
Replies: 1
Views: 2111
1
2111
2015-02-05 15:25:24 by Sharon Osvald

Holiday Grief by Sharon Osvald

Christmas and Holidays can be difficult for families whose loved ones are living with deme...
Replies: 0
Views: 2254
0
2254
2014-12-22 15:05:25 by Sharon Osvald

What I Wish I Knew Before My Spouse/Parent Entered Long Term Care? by Sharon Osvald

Our last live chat we had some very good discussions about how some wished they had been b...
Replies: 4
Views: 2482
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2482
2014-11-24 15:06:05 by Sharon Osvald

Long Term Care by Anonymous

Share your advice and observations about the care and support received in long term care...
Replies: 7
Views: 2795
7
2795
2014-11-24 11:44:04 by Dawng

Great "Tangible" Tips for Dealing with various common issues by Sharon Osvald

Hi everyone, Several of you have asked me to share some tangible tips for dealing with va...
Replies: 1
Views: 2685
1
2685
2014-11-18 15:04:26 by Sharon Osvald

Heart of Homecare video by Vicky

https://www.youtube.com/watch?v=v_OFfqw_dFw...
Replies: 2
Views: 2766
2
2766
2014-11-13 08:59:45 by lrhare

Adjusting to Long Term Care- Webinar by Sharon Osvald

In our last Live Chat, we discussed how we could have been better prepared and know what t...
Replies: 0
Views: 1985
0
1985
2014-11-12 14:40:37 by Sharon Osvald

The Pleasure of Remembering by Sharon Osvald

Here's a little bit of my story and about the loss of being able to remember with the ones...
Replies: 0
Views: 2090
0
2090
2014-10-10 21:17:53 by Sharon Osvald

The Heart Break of Caring by Sharon Osvald

A very honest narrative of what it is like to be the daughter of two parents with dementia...
Replies: 0
Views: 1948
0
1948
2014-10-10 11:28:16 by Sharon Osvald

Living with Dementia - Early Onset Part Two by Sharon Osvald

A look at early onset: http://www.youtube.com/watch?v=I4Z33OrAWho...
Replies: 0
Views: 1933
0
1933
2014-10-06 10:22:42 by Sharon Osvald

A Look at Living with Dementia Part One by Sharon Osvald

Worth the watch: http://globalnews.ca/video/1589220/living-with-dementia-part-1-the-caregi...
Replies: 0
Views: 1978
0
1978
2014-10-06 10:11:16 by Sharon Osvald

What kept me from asking for help - Response to Findings by Dawn G by Sharon Osvald

- Although it was suggested that I contact the Alzheimer’s Society …. I did not, as I just...
Replies: 0
Views: 2196
0
2196
2014-09-08 22:43:40 by Sharon Osvald

Navigation - in Response to Findings - By Dawn G by Sharon Osvald

- I loved the quote about woman who felt as is she was “running a business” trying to navi...
Replies: 0
Views: 2172
0
2172
2014-09-08 22:41:30 by Sharon Osvald

Caregiver Health - Shared by bluebird by Sharon Osvald

https://www.youtube.com/watch?v=c6IL8WVyMMs This is a link to a video by Dr. Gabor Mate...
Replies: 0
Views: 2083
0
2083
2014-09-08 22:30:04 by Sharon Osvald

Brighton, Ontario Navigation and Information Group by Sharon Osvald

If you are from the Brighton, Ontario area: Come to T.R.E.N.D.S., an informal group that m...
Replies: 0
Views: 2339
0
2339
2014-07-21 12:52:36 by Sharon Osvald

Power of Attorney Article by Sharon Osvald

Check out the latest article about some of the issues surrounding Power of Attorney. http...
Replies: 1
Views: 2345
1
2345
2014-07-21 10:06:39 by Sharon Osvald

Interesting article by Db's

http://m.huffpost.com/us/entry/5515972?utm_hp_ref=fifty&ir=Fifty Copy and paste into yo...
Replies: 1
Views: 2906
1
2906
2014-07-21 10:05:29 by Sharon Osvald

To find out or Not by Db's

If you could take the blood test now to detect Alzheimers, would you? and what would you d...
Replies: 10
Views: 3343
10
3343
2014-06-10 22:51:39 by Db's

The Long Term Care Homes Act? by Sharon Osvald

I am hearing from several people that the 'Long Term Care Homes Act" has some rules that a...
Replies: 0
Views: 2257
0
2257
2014-05-26 11:52:29 by Sharon Osvald

A Summary of CBC's The Current Feature on Dementia by Sharon Osvald

In Case you missed it - A summary of CBC The Current's Feature on Dementia: https://uwater...
Replies: 0
Views: 2314
0
2314
2014-05-25 22:46:46 by Sharon Osvald

Using Technology for Residents in LTC by Db's

Yes I would love to see the facilities upgraded and get with the times. I know as I age, a...
Replies: 1
Views: 2429
1
2429
2014-05-25 19:19:04 by Sharon Osvald

Too Many Assessments! by bluebird

As my husband's Alzheimers has advanced I have tried to avail myself of more services, onl...
Replies: 3
Views: 2971
3
2971
2014-05-25 19:08:21 by Sharon Osvald

Treatment of Urinary Tract Infections by MissingMom

UTI's are also an ongoing problem & it has always been a battle to get them to get a sampl...
Replies: 2
Views: 2955
2
2955
2014-05-25 18:49:36 by Sharon Osvald

The Admitting and Intake Process by MissingMom

Our intake (to Long Term Care) was terrible. It took almost 5 hours because they weren't v...
Replies: 2
Views: 2838
2
2838
2014-05-25 18:26:52 by Sharon Osvald

Questions for candidates by bluebird

The coming election offers us an opportunity to bring some attention to the issue of demen...
Replies: 1
Views: 2178
1
2178
2014-05-25 18:13:26 by Sharon Osvald

Resources by Sharon Osvald

Do you know of any good resources or articles to share about improving dementia care you'd...
Replies: 9
Views: 3482
9
3482
2014-04-07 15:45:14 by Sharon Osvald

Community Supports by CrossRoads

What advice would you give to community supports based on your lived experiences – i.e. Al...
Replies: 1
Views: 2362
1
2362
2014-04-07 15:31:44 by Sharon Osvald

I told you Already!! by Db's

Is there a favorite sentence or word that comes to mind that really upsets you when you ...
Replies: 2
Views: 2279
2
2279
2014-04-02 22:42:41 by Sharon Osvald

Hospital Experiences by CrossRoads

Share your advice and observations based on experiences in the hospital – i.e. in emergenc...
Replies: 6
Views: 2570
6
2570
2014-03-27 20:57:46 by cvh

Respite by CrossRoads

Share your advice and observations about respite care received – i.e. adult day care progr...
Replies: 13
Views: 3392
13
3392
2014-03-25 22:08:28 by Sharon Osvald

Transitions From Home, Hospital and to Long Term Care by CrossRoads

Often times, it is when moving between healthcare providers that people fall through the c...
Replies: 2
Views: 2633
2
2633
2014-03-24 13:54:31 by Sharon Osvald

Diagnosing Dementia Experience and Conversations with Doctors by CrossRoads

Share your advice and observations linked to your experiences dealing with doctors, nurses...
Replies: 4
Views: 2708
4
2708
2014-03-24 13:49:24 by Sharon Osvald

Retirement Homes and Assisted Living by CrossRoads

Share your advice and observations about the care and support while in Retirement Homes or...
Replies: 0
Views: 2280
0
2280
2014-02-10 10:39:53 by CrossRoads