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The Lived Experienced Café
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Moderator(s): CrossRoads

The Importance of Volunteers by Sharon Osvald

In our October 2017 Provincial Chat, participants shared about the importance of using vol...
Replies: 0
Views: 81
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81
2017-10-30 22:06:03 by Sharon Osvald

Dementia Friendly Communities by Sharon Osvald

In our October 2017 Provincial Live Chat, the topic of Dementia Friendly Communities was d...
Replies: 0
Views: 45
0
45
2017-10-30 22:00:15 by Sharon Osvald

Geriatric Emergency Management Nurses by Sharon Osvald

In our October 2017 Provincial Live Chat, the topic of GEM Nurses came up. Has anyone expe...
Replies: 0
Views: 46
0
46
2017-10-30 21:56:24 by Sharon Osvald

Book to Read? by Sharon Osvald

I haven't read this book so can't make a personal recommendation but am always on the look...
Replies: 0
Views: 177
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177
2017-09-08 11:52:36 by Sharon Osvald

Adult Day Programs? Share with the Ministry of Health and Long Term Care? by Sharon Osvald

On Wednesday, June 21st from 6:30 -8:00PM, we will be holding a province-wide online (type...
Replies: 2
Views: 498
2
498
2017-06-20 13:34:44 by Sharon Osvald

November Live Chat Topic by Sharon Osvald

If you are unable to attend the Lived Experience Cafe "Live (typed) Chat event this Tuesda...
Replies: 3
Views: 922
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922
2017-06-08 22:20:49 by Sharon Osvald

Behavioural Supports and Where to find help by Sharon Osvald

The following is an article shared by one of our Provincial Lived Experience Advisory Memb...
Replies: 0
Views: 385
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385
2017-04-25 12:35:14 by Sharon Osvald

The Best of the Best! by Sharon Osvald

Reflecting on your lived experience, what are the "best of the best" services, websites an...
Replies: 0
Views: 337
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337
2017-04-12 10:29:35 by Sharon Osvald

October's Live Chat Discussion on Caregiver Education/Supports by Sharon Osvald

If you weren't able to attend our live chat but still want to share your thoughts: This mo...
Replies: 1
Views: 1233
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1233
2017-05-02 20:01:22 by Jenn

Provincial Dementia Strategy Discussion Paper by Sharon Osvald

You now have an opportunity to share your input on the development of a provincial dementi...
Replies: 1
Views: 773
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773
2016-09-27 09:52:25 by Sharon Osvald

Navigating Health Care by Sharon Osvald

This week in our provincial lived experience chat, we asked people to share their experien...
Replies: 2
Views: 960
2
960
2016-09-27 09:46:36 by Sharon Osvald

Turmeric for dementia by Anabell

Hi! Does Turmeric help in curing Dementia? I read an article ( http://www.best-alzheimers...
Replies: 4
Views: 1100
4
1100
2016-09-08 07:54:08 by Edward Charette

Possible dementia. by Anabell

Hi, My mother is 65 years old. I surmise that she has serious memory problem. I think she...
Replies: 3
Views: 963
3
963
2016-09-08 07:57:45 by Edward Charette

Trust and Boundaries by Rosemunda

Trust and boundaries- what is your comfort level with paid care providers? Since last Sep...
Replies: 1
Views: 1082
1
1082
2016-05-05 15:21:18 by Sharon Osvald

What Has Your Experience Been Like with Emergency Rooms and Police? by Sharon Osvald

If you are unable to take part in May's live chat, we still want to hear - What has your e...
Replies: 1
Views: 1106
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1106
2016-05-02 11:33:17 by Rosemunda

First Chat Back - Share you views... by Sharon Osvald

Our Next Live Chat will take place the first Tuesday night of the month on Tuesday, April ...
Replies: 0
Views: 1009
0
1009
2016-04-01 14:36:43 by Sharon Osvald

What IS working? by Sharon Osvald

If you missed our monthly live chat for May, you might want to consider sharing some of th...
Replies: 1
Views: 1472
1
1472
2016-04-01 14:33:02 by Sharon Osvald

Mobile Response Teams by Sharon Osvald

Hi all, I am looking for some stories and observations to pass on the Behavioural Support ...
Replies: 2
Views: 1792
2
1792
2016-04-01 14:21:40 by Sharon Osvald

Caregiver to Caregiver by CrossRoads

Pass on your best advice – what worked well for you as a caregiver. Share where did you ...
Replies: 10
Views: 3325
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3325
2016-04-01 14:13:36 by Sharon Osvald

Managing the Holidays - the guilt and the chaos by Sharon Osvald

This is a post shared on behalf of Lived Experience Member, Dawng: "Xmas is an emotiona...
Replies: 1
Views: 1331
1
1331
2015-12-04 12:35:29 by Sharon Osvald

The real life costs of the by Sharon Osvald

This post was shared by one of our lived experience cafe members , EJB: “There is a re...
Replies: 1
Views: 1098
1
1098
2015-12-04 12:31:08 by Sharon Osvald

Dementia and Depression Webinar by Sharon Osvald

Check out this video/webinar about Dementia and Depression - some great info and discussio...
Replies: 0
Views: 1198
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1198
2015-10-30 12:17:05 by Sharon Osvald

Provincial Patient Ombudsman Soon to Be Appointed by Sharon Osvald

Interesting Opportunity! Minister Hoskins announced this week that they are now seeking pu...
Replies: 0
Views: 1388
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1388
2015-07-10 09:27:37 by Sharon Osvald

Re: Respite and Health Care Tomorrow Survey Feedback by Sharon Osvald

This message is shared by request from Lived Experience Network member Rosemunda: Health...
Replies: 1
Views: 1325
1
1325
2015-06-01 18:35:06 by Sharon Osvald

Home Care by CrossRoads

Share your advice and observations about the care and support received at home....
Replies: 6
Views: 2363
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2363
2015-04-16 00:28:17 by thomasccasey@outlook.com

The Seven Deadly Emotions of Caregiving by Sharon Osvald

Here is a great article that helps us deal with some negative and very normal emotions th...
Replies: 0
Views: 1459
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1459
2015-03-23 14:45:49 by Sharon Osvald

Feedback from Feb Chat on Transitions by Sharon Osvald

Submitted by Email from Lived Experience Network Member, Janine: How transitions can be i...
Replies: 0
Views: 1360
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1360
2015-03-05 12:02:26 by Sharon Osvald

Financial Institution - the rest of the story by Sharon Osvald

Awhile back GingersHalo posted a discussion thread about her husband and his battle with a...
Replies: 2
Views: 1847
2
1847
2015-03-05 11:38:55 by Sharon Osvald

Financial - Warning Surrendered Life Insurance Policies by GingersHalo

My husband surrendered his life insurance policies in November,while I was out of the coun...
Replies: 3
Views: 2058
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2058
2015-02-25 00:25:27 by Sharon Osvald

Memory Testing by Sharon Osvald

The Following Post was shared with me by email to be shared here by member Bluebird. So...
Replies: 5
Views: 1544
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1544
2015-02-25 00:22:36 by Sharon Osvald

Dignity - Response to Findings - By Dawn G. by Sharon Osvald

- Dignity – not only for the patient but for the family. Nothing can prepare you for the ...
Replies: 1
Views: 1610
1
1610
2015-02-05 15:25:24 by Sharon Osvald

Holiday Grief by Sharon Osvald

Christmas and Holidays can be difficult for families whose loved ones are living with deme...
Replies: 0
Views: 1608
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1608
2014-12-22 15:05:25 by Sharon Osvald

What I Wish I Knew Before My Spouse/Parent Entered Long Term Care? by Sharon Osvald

Our last live chat we had some very good discussions about how some wished they had been b...
Replies: 4
Views: 1887
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1887
2014-11-24 15:06:05 by Sharon Osvald

Long Term Care by Anonymous

Share your advice and observations about the care and support received in long term care...
Replies: 7
Views: 2232
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2232
2014-11-24 11:44:04 by Dawng

Great "Tangible" Tips for Dealing with various common issues by Sharon Osvald

Hi everyone, Several of you have asked me to share some tangible tips for dealing with va...
Replies: 1
Views: 2115
1
2115
2014-11-18 15:04:26 by Sharon Osvald

Heart of Homecare video by Vicky

https://www.youtube.com/watch?v=v_OFfqw_dFw...
Replies: 2
Views: 2013
2
2013
2014-11-13 08:59:45 by lrhare

Adjusting to Long Term Care- Webinar by Sharon Osvald

In our last Live Chat, we discussed how we could have been better prepared and know what t...
Replies: 0
Views: 1431
0
1431
2014-11-12 14:40:37 by Sharon Osvald

The Pleasure of Remembering by Sharon Osvald

Here's a little bit of my story and about the loss of being able to remember with the ones...
Replies: 0
Views: 1481
0
1481
2014-10-10 21:17:53 by Sharon Osvald

The Heart Break of Caring by Sharon Osvald

A very honest narrative of what it is like to be the daughter of two parents with dementia...
Replies: 0
Views: 1480
0
1480
2014-10-10 11:28:16 by Sharon Osvald

Living with Dementia - Early Onset Part Two by Sharon Osvald

A look at early onset: http://www.youtube.com/watch?v=I4Z33OrAWho...
Replies: 0
Views: 1432
0
1432
2014-10-06 10:22:42 by Sharon Osvald

A Look at Living with Dementia Part One by Sharon Osvald

Worth the watch: http://globalnews.ca/video/1589220/living-with-dementia-part-1-the-caregi...
Replies: 0
Views: 1515
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1515
2014-10-06 10:11:16 by Sharon Osvald

What kept me from asking for help - Response to Findings by Dawn G by Sharon Osvald

- Although it was suggested that I contact the Alzheimer’s Society …. I did not, as I just...
Replies: 0
Views: 1669
0
1669
2014-09-08 22:43:40 by Sharon Osvald

Navigation - in Response to Findings - By Dawn G by Sharon Osvald

- I loved the quote about woman who felt as is she was “running a business” trying to navi...
Replies: 0
Views: 1614
0
1614
2014-09-08 22:41:30 by Sharon Osvald

Caregiver Health - Shared by bluebird by Sharon Osvald

https://www.youtube.com/watch?v=c6IL8WVyMMs This is a link to a video by Dr. Gabor Mate...
Replies: 0
Views: 1560
0
1560
2014-09-08 22:30:04 by Sharon Osvald

Brighton, Ontario Navigation and Information Group by Sharon Osvald

If you are from the Brighton, Ontario area: Come to T.R.E.N.D.S., an informal group that m...
Replies: 0
Views: 1720
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1720
2014-07-21 12:52:36 by Sharon Osvald

Power of Attorney Article by Sharon Osvald

Check out the latest article about some of the issues surrounding Power of Attorney. http...
Replies: 1
Views: 1739
1
1739
2014-07-21 10:06:39 by Sharon Osvald

Interesting article by Db's

http://m.huffpost.com/us/entry/5515972?utm_hp_ref=fifty&ir=Fifty Copy and paste into yo...
Replies: 1
Views: 2150
1
2150
2014-07-21 10:05:29 by Sharon Osvald

To find out or Not by Db's

If you could take the blood test now to detect Alzheimers, would you? and what would you d...
Replies: 10
Views: 2507
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2507
2014-06-10 22:51:39 by Db's

The Long Term Care Homes Act? by Sharon Osvald

I am hearing from several people that the 'Long Term Care Homes Act" has some rules that a...
Replies: 0
Views: 1686
0
1686
2014-05-26 11:52:29 by Sharon Osvald

A Summary of CBC's The Current Feature on Dementia by Sharon Osvald

In Case you missed it - A summary of CBC The Current's Feature on Dementia: https://uwater...
Replies: 0
Views: 1708
0
1708
2014-05-25 22:46:46 by Sharon Osvald

Using Technology for Residents in LTC by Db's

Yes I would love to see the facilities upgraded and get with the times. I know as I age, a...
Replies: 1
Views: 1819
1
1819
2014-05-25 19:19:04 by Sharon Osvald

Too Many Assessments! by bluebird

As my husband's Alzheimers has advanced I have tried to avail myself of more services, onl...
Replies: 3
Views: 2267
3
2267
2014-05-25 19:08:21 by Sharon Osvald

Treatment of Urinary Tract Infections by MissingMom

UTI's are also an ongoing problem & it has always been a battle to get them to get a sampl...
Replies: 2
Views: 2259
2
2259
2014-05-25 18:49:36 by Sharon Osvald

The Admitting and Intake Process by MissingMom

Our intake (to Long Term Care) was terrible. It took almost 5 hours because they weren't v...
Replies: 2
Views: 2157
2
2157
2014-05-25 18:26:52 by Sharon Osvald

Questions for candidates by bluebird

The coming election offers us an opportunity to bring some attention to the issue of demen...
Replies: 1
Views: 1647
1
1647
2014-05-25 18:13:26 by Sharon Osvald

Resources by Sharon Osvald

Do you know of any good resources or articles to share about improving dementia care you'd...
Replies: 9
Views: 2734
9
2734
2014-04-07 15:45:14 by Sharon Osvald

Community Supports by CrossRoads

What advice would you give to community supports based on your lived experiences – i.e. Al...
Replies: 1
Views: 1851
1
1851
2014-04-07 15:31:44 by Sharon Osvald

I told you Already!! by Db's

Is there a favorite sentence or word that comes to mind that really upsets you when you ...
Replies: 2
Views: 1767
2
1767
2014-04-02 22:42:41 by Sharon Osvald

Hospital Experiences by CrossRoads

Share your advice and observations based on experiences in the hospital – i.e. in emergenc...
Replies: 6
Views: 1957
6
1957
2014-03-27 20:57:46 by cvh

Respite by CrossRoads

Share your advice and observations about respite care received – i.e. adult day care progr...
Replies: 13
Views: 2587
13
2587
2014-03-25 22:08:28 by Sharon Osvald

Transitions From Home, Hospital and to Long Term Care by CrossRoads

Often times, it is when moving between healthcare providers that people fall through the c...
Replies: 2
Views: 2082
2
2082
2014-03-24 13:54:31 by Sharon Osvald

Diagnosing Dementia Experience and Conversations with Doctors by CrossRoads

Share your advice and observations linked to your experiences dealing with doctors, nurses...
Replies: 4
Views: 2179
4
2179
2014-03-24 13:49:24 by Sharon Osvald

Retirement Homes and Assisted Living by CrossRoads

Share your advice and observations about the care and support while in Retirement Homes or...
Replies: 0
Views: 1753
0
1753
2014-02-10 10:39:53 by CrossRoads