Members:

Text Size:  A  A
Our Discussion Forum
Share Your Thoughts
Virtual Visit FAQ's
Check out the tip sheet for a Virtual Visit
Learn more
Resource Exchange Update
An opportunity for those who plan and provide services for older adults in SE Ontario to receive the findings of our Lived Experience Network face to face, and through phone / online conversations.
Learn More
SE Ontario Live Chat
Evening South Eastern Ontario Chats will take place every first Tuesday of the month from 6:30-8PM.
Login HereSign Up

The Lived Experienced Café
Activity
Replies
Views
Most Recent Post
Moderator(s): CrossRoads

Adult Day Programs? Share with the Ministry of Health and Long Term Care? by Sharon Osvald

On Wednesday, June 21st from 6:30 -8:00PM, we will be holding a province-wide online (type...
Replies: 2
Views: 2778
2
2778
2017-06-20 13:34:44 by Sharon Osvald

Changes with the SE Ontario Lived Experience Network by Sharon Osvald

Please note that at the end of July, 2018, Sharon Osvald will be moving into another posit...
Replies: 0
Views: 1464
0
1464
2018-07-18 10:05:22 by Sharon Osvald

what do you do when a parent dies at home by lauriejones

My sisters and I are caring for our father AT HOME. He has Alzheimer Dementia. He told ...
Replies: 6
Views: 2296
6
2296
2018-02-09 13:21:30 by Sharon Osvald

by Toronto condo realtor

...
Replies: 0
Views: 1245
0
1245
2018-07-06 20:36:42 by Toronto condo realtor

Butterfly Project by Sharon Osvald

Check out the link to the video as well as the full article in the Toronto Star. (Cut and ...
Replies: 0
Views: 1134
0
1134
2018-06-25 11:00:40 by Sharon Osvald

Link to Alzheimer Society Public Education Campaign by Sharon Osvald

This link was shared in our April 2018 Provincial Live Chat. It is the Alzheimer Society A...
Replies: 0
Views: 1046
0
1046
2018-05-14 11:23:37 by Sharon Osvald

Patient and Family Advisory Members needed for the SE LHIN by Sharon Osvald

The SE Local Health Integration Network is currently recruiting for a Patient and Family ...
Replies: 0
Views: 1421
0
1421
2018-02-16 21:25:40 by Sharon Osvald

Family Physicians/Nurse Practitioners and Care Coordination by Sharon Osvald

Tonight's live chat comes to us from the South East Local Health Integration Network - if ...
Replies: 0
Views: 1408
0
1408
2018-02-06 17:03:20 by Sharon Osvald

Advance Planning Tips by Sharon Osvald

If you are looking for more information about advance planning, power of attorney, power o...
Replies: 0
Views: 1742
0
1742
2017-12-14 11:00:34 by Sharon Osvald

The Importance of Volunteers by Sharon Osvald

In our October 2017 Provincial Chat, participants shared about the importance of using vol...
Replies: 0
Views: 1814
0
1814
2017-10-30 22:06:03 by Sharon Osvald

Dementia Friendly Communities by Sharon Osvald

In our October 2017 Provincial Live Chat, the topic of Dementia Friendly Communities was d...
Replies: 0
Views: 1346
0
1346
2017-10-30 22:00:15 by Sharon Osvald

Geriatric Emergency Management Nurses by Sharon Osvald

In our October 2017 Provincial Live Chat, the topic of GEM Nurses came up. Has anyone expe...
Replies: 0
Views: 1439
0
1439
2017-10-30 21:56:24 by Sharon Osvald

Book to Read? by Sharon Osvald

I haven't read this book so can't make a personal recommendation but am always on the look...
Replies: 0
Views: 1894
0
1894
2017-09-08 11:52:36 by Sharon Osvald

November Live Chat Topic by Sharon Osvald

If you are unable to attend the Lived Experience Cafe "Live (typed) Chat event this Tuesda...
Replies: 3
Views: 2946
3
2946
2017-06-08 22:20:49 by Sharon Osvald

Behavioural Supports and Where to find help by Sharon Osvald

The following is an article shared by one of our Provincial Lived Experience Advisory Memb...
Replies: 0
Views: 1939
0
1939
2017-04-25 12:35:14 by Sharon Osvald

The Best of the Best! by Sharon Osvald

Reflecting on your lived experience, what are the "best of the best" services, websites an...
Replies: 0
Views: 1822
0
1822
2017-04-12 10:29:35 by Sharon Osvald

October's Live Chat Discussion on Caregiver Education/Supports by Sharon Osvald

If you weren't able to attend our live chat but still want to share your thoughts: This mo...
Replies: 1
Views: 5568
1
5568
2017-05-02 20:01:22 by Jenn

Provincial Dementia Strategy Discussion Paper by Sharon Osvald

You now have an opportunity to share your input on the development of a provincial dementi...
Replies: 1
Views: 2104
1
2104
2016-09-27 09:52:25 by Sharon Osvald

Navigating Health Care by Sharon Osvald

This week in our provincial lived experience chat, we asked people to share their experien...
Replies: 2
Views: 5804
2
5804
2016-09-27 09:46:36 by Sharon Osvald

Turmeric for dementia by Anabell

Hi! Does Turmeric help in curing Dementia? I read an article ( http://www.best-alzheimers...
Replies: 4
Views: 3634
4
3634
2016-09-08 07:54:08 by Edward Charette

Possible dementia. by Anabell

Hi, My mother is 65 years old. I surmise that she has serious memory problem. I think she...
Replies: 3
Views: 3215
3
3215
2016-09-08 07:57:45 by Edward Charette

Trust and Boundaries by Rosemunda

Trust and boundaries- what is your comfort level with paid care providers? Since last Sep...
Replies: 1
Views: 2883
1
2883
2016-05-05 15:21:18 by Sharon Osvald

What Has Your Experience Been Like with Emergency Rooms and Police? by Sharon Osvald

If you are unable to take part in May's live chat, we still want to hear - What has your e...
Replies: 1
Views: 3098
1
3098
2016-05-02 11:33:17 by Rosemunda

First Chat Back - Share you views... by Sharon Osvald

Our Next Live Chat will take place the first Tuesday night of the month on Tuesday, April ...
Replies: 0
Views: 2739
0
2739
2016-04-01 14:36:43 by Sharon Osvald

What IS working? by Sharon Osvald

If you missed our monthly live chat for May, you might want to consider sharing some of th...
Replies: 1
Views: 3231
1
3231
2016-04-01 14:33:02 by Sharon Osvald

Mobile Response Teams by Sharon Osvald

Hi all, I am looking for some stories and observations to pass on the Behavioural Support ...
Replies: 2
Views: 3405
2
3405
2016-04-01 14:21:40 by Sharon Osvald

Managing the Holidays - the guilt and the chaos by Sharon Osvald

This is a post shared on behalf of Lived Experience Member, Dawng: "Xmas is an emotiona...
Replies: 1
Views: 3129
1
3129
2015-12-04 12:35:29 by Sharon Osvald

Dementia and Depression Webinar by Sharon Osvald

Check out this video/webinar about Dementia and Depression - some great info and discussio...
Replies: 0
Views: 2917
0
2917
2015-10-30 12:17:05 by Sharon Osvald

Provincial Patient Ombudsman Soon to Be Appointed by Sharon Osvald

Interesting Opportunity! Minister Hoskins announced this week that they are now seeking pu...
Replies: 0
Views: 3174
0
3174
2015-07-10 09:27:37 by Sharon Osvald

Re: Respite and Health Care Tomorrow Survey Feedback by Sharon Osvald

This message is shared by request from Lived Experience Network member Rosemunda: Health...
Replies: 1
Views: 3003
1
3003
2015-06-01 18:35:06 by Sharon Osvald

The Seven Deadly Emotions of Caregiving by Sharon Osvald

Here is a great article that helps us deal with some negative and very normal emotions th...
Replies: 0
Views: 3203
0
3203
2015-03-23 14:45:49 by Sharon Osvald

Feedback from Feb Chat on Transitions by Sharon Osvald

Submitted by Email from Lived Experience Network Member, Janine: How transitions can be i...
Replies: 0
Views: 2963
0
2963
2015-03-05 12:02:26 by Sharon Osvald

Financial Institution - the rest of the story by Sharon Osvald

Awhile back GingersHalo posted a discussion thread about her husband and his battle with a...
Replies: 2
Views: 4129
2
4129
2015-03-05 11:38:55 by Sharon Osvald

Financial - Warning Surrendered Life Insurance Policies by GingersHalo

My husband surrendered his life insurance policies in November,while I was out of the coun...
Replies: 3
Views: 4369
3
4369
2015-02-25 00:25:27 by Sharon Osvald

Memory Testing by Sharon Osvald

The Following Post was shared with me by email to be shared here by member Bluebird. So...
Replies: 5
Views: 2905
5
2905
2015-02-25 00:22:36 by Sharon Osvald

Dignity - Response to Findings - By Dawn G. by Sharon Osvald

- Dignity not only for the patient but for the family. Nothing can prepare you for the ...
Replies: 1
Views: 3180
1
3180
2015-02-05 15:25:24 by Sharon Osvald

Holiday Grief by Sharon Osvald

Christmas and Holidays can be difficult for families whose loved ones are living with deme...
Replies: 0
Views: 3350
0
3350
2014-12-22 15:05:25 by Sharon Osvald

What I Wish I Knew Before My Spouse/Parent Entered Long Term Care? by Sharon Osvald

Our last live chat we had some very good discussions about how some wished they had been b...
Replies: 4
Views: 3622
4
3622
2014-11-24 15:06:05 by Sharon Osvald

Long Term Care by Anonymous

Share your advice and observations about the care and support received in long term care...
Replies: 7
Views: 3759
7
3759
2014-11-24 11:44:04 by Dawng

Great "Tangible" Tips for Dealing with various common issues by Sharon Osvald

Hi everyone, Several of you have asked me to share some tangible tips for dealing with va...
Replies: 1
Views: 3749
1
3749
2014-11-18 15:04:26 by Sharon Osvald

Heart of Homecare video by Vicky

https://www.youtube.com/watch?v=v_OFfqw_dFw...
Replies: 2
Views: 4502
2
4502
2014-11-13 08:59:45 by lrhare

Adjusting to Long Term Care- Webinar by Sharon Osvald

In our last Live Chat, we discussed how we could have been better prepared and know what t...
Replies: 0
Views: 2989
0
2989
2014-11-12 14:40:37 by Sharon Osvald

The Pleasure of Remembering by Sharon Osvald

Here's a little bit of my story and about the loss of being able to remember with the ones...
Replies: 0
Views: 3175
0
3175
2014-10-10 21:17:53 by Sharon Osvald

The Heart Break of Caring by Sharon Osvald

A very honest narrative of what it is like to be the daughter of two parents with dementia...
Replies: 0
Views: 2801
0
2801
2014-10-10 11:28:16 by Sharon Osvald

Living with Dementia - Early Onset Part Two by Sharon Osvald

A look at early onset: http://www.youtube.com/watch?v=I4Z33OrAWho...
Replies: 0
Views: 2988
0
2988
2014-10-06 10:22:42 by Sharon Osvald

A Look at Living with Dementia Part One by Sharon Osvald

Worth the watch: http://globalnews.ca/video/1589220/living-with-dementia-part-1-the-caregi...
Replies: 0
Views: 3277
0
3277
2014-10-06 10:11:16 by Sharon Osvald

What kept me from asking for help - Response to Findings by Dawn G by Sharon Osvald

- Although it was suggested that I contact the Alzheimers Society . I did not, as I just...
Replies: 0
Views: 3215
0
3215
2014-09-08 22:43:40 by Sharon Osvald

Navigation - in Response to Findings - By Dawn G by Sharon Osvald

- I loved the quote about woman who felt as is she was running a business trying to navi...
Replies: 0
Views: 3193
0
3193
2014-09-08 22:41:30 by Sharon Osvald

Caregiver Health - Shared by bluebird by Sharon Osvald

https://www.youtube.com/watch?v=c6IL8WVyMMs This is a link to a video by Dr. Gabor Mate...
Replies: 0
Views: 2929
0
2929
2014-09-08 22:30:04 by Sharon Osvald

Brighton, Ontario Navigation and Information Group by Sharon Osvald

If you are from the Brighton, Ontario area: Come to T.R.E.N.D.S., an informal group that m...
Replies: 0
Views: 3447
0
3447
2014-07-21 12:52:36 by Sharon Osvald

Power of Attorney Article by Sharon Osvald

Check out the latest article about some of the issues surrounding Power of Attorney. http...
Replies: 1
Views: 3168
1
3168
2014-07-21 10:06:39 by Sharon Osvald

Interesting article by Db's

http://m.huffpost.com/us/entry/5515972?utm_hp_ref=fifty&ir=Fifty Copy and paste into yo...
Replies: 1
Views: 4299
1
4299
2014-07-21 10:05:29 by Sharon Osvald

To find out or Not by Db's

If you could take the blood test now to detect Alzheimers, would you? and what would you d...
Replies: 10
Views: 4796
10
4796
2014-06-10 22:51:39 by Db's

The Long Term Care Homes Act? by Sharon Osvald

I am hearing from several people that the 'Long Term Care Homes Act" has some rules that a...
Replies: 0
Views: 3324
0
3324
2014-05-26 11:52:29 by Sharon Osvald

A Summary of CBC's The Current Feature on Dementia by Sharon Osvald

In Case you missed it - A summary of CBC The Current's Feature on Dementia: https://uwater...
Replies: 0
Views: 3415
0
3415
2014-05-25 22:46:46 by Sharon Osvald

Using Technology for Residents in LTC by Db's

Yes I would love to see the facilities upgraded and get with the times. I know as I age, a...
Replies: 1
Views: 3409
1
3409
2014-05-25 19:19:04 by Sharon Osvald

Too Many Assessments! by bluebird

As my husband's Alzheimers has advanced I have tried to avail myself of more services, onl...
Replies: 3
Views: 4436
3
4436
2014-05-25 19:08:21 by Sharon Osvald

Treatment of Urinary Tract Infections by MissingMom

UTI's are also an ongoing problem & it has always been a battle to get them to get a sampl...
Replies: 2
Views: 4228
2
4228
2014-05-25 18:49:36 by Sharon Osvald

The Admitting and Intake Process by MissingMom

Our intake (to Long Term Care) was terrible. It took almost 5 hours because they weren't v...
Replies: 2
Views: 4105
2
4105
2014-05-25 18:26:52 by Sharon Osvald

Questions for candidates by bluebird

The coming election offers us an opportunity to bring some attention to the issue of demen...
Replies: 1
Views: 3234
1
3234
2014-05-25 18:13:26 by Sharon Osvald

Resources by Sharon Osvald

Do you know of any good resources or articles to share about improving dementia care you'd...
Replies: 9
Views: 4983
9
4983
2014-04-07 15:45:14 by Sharon Osvald

Community Supports by CrossRoads

What advice would you give to community supports based on your lived experiences i.e. Al...
Replies: 1
Views: 3468
1
3468
2014-04-07 15:31:44 by Sharon Osvald

I told you Already!! by Db's

Is there a favorite sentence or word that comes to mind that really upsets you when you ...
Replies: 2
Views: 3302
2
3302
2014-04-02 22:42:41 by Sharon Osvald

Hospital Experiences by CrossRoads

Share your advice and observations based on experiences in the hospital i.e. in emergenc...
Replies: 6
Views: 3684
6
3684
2014-03-27 20:57:46 by cvh

Respite by CrossRoads

Share your advice and observations about respite care received i.e. adult day care progr...
Replies: 13
Views: 4915
13
4915
2014-03-25 22:08:28 by Sharon Osvald

Transitions From Home, Hospital and to Long Term Care by CrossRoads

Often times, it is when moving between healthcare providers that people fall through the c...
Replies: 2
Views: 3777
2
3777
2014-03-24 13:54:31 by Sharon Osvald

Diagnosing Dementia Experience and Conversations with Doctors by CrossRoads

Share your advice and observations linked to your experiences dealing with doctors, nurses...
Replies: 4
Views: 4191
4
4191
2014-03-24 13:49:24 by Sharon Osvald

Retirement Homes and Assisted Living by CrossRoads

Share your advice and observations about the care and support while in Retirement Homes or...
Replies: 0
Views: 3297
0
3297
2014-02-10 10:39:53 by CrossRoads

Caregiver to Caregiver by Anonymous

Pass on your best advice what worked well for you as a caregiver. Share where did you find...
Replies: 10
Views: 1283
10
1283
2016-04-01 14:13:36 by Sharon Osvald

The real life costs of the by Anonymous

This post was shared by one of our lived experience cafe members , EJB: There is a rea...
Replies: 1
Views: 940
1
940
2015-12-04 12:31:08 by Sharon Osvald