The Lived Experienced Café
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Moderator(s): CrossRoads
Adult Day Programs? Share with the Ministry of Health and Long Term Care? by Sharon Osvald
On Wednesday, June 21st from 6:30 -8:00PM, we will be holding a province-wide online (type...
Replies: 2
Views: 2778
Views: 2778
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2778
2017-06-20 13:34:44 by
Sharon Osvald
Changes with the SE Ontario Lived Experience Network by Sharon Osvald
Please note that at the end of July, 2018, Sharon Osvald will be moving into another posit...
Replies: 0
Views: 1464
Views: 1464
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1464
2018-07-18 10:05:22 by
Sharon Osvald
what do you do when a parent dies at home by lauriejones
My sisters and I are caring for our father AT HOME. He has Alzheimer Dementia. He told ...
Replies: 6
Views: 2296
Views: 2296
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2296
2018-02-09 13:21:30 by
Sharon Osvald
Butterfly Project by Sharon Osvald
Check out the link to the video as well as the full article in the Toronto Star. (Cut and ...
Replies: 0
Views: 1134
Views: 1134
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1134
2018-06-25 11:00:40 by
Sharon Osvald
Link to Alzheimer Society Public Education Campaign by Sharon Osvald
This link was shared in our April 2018 Provincial Live Chat. It is the Alzheimer Society A...
Replies: 0
Views: 1046
Views: 1046
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1046
2018-05-14 11:23:37 by
Sharon Osvald
Patient and Family Advisory Members needed for the SE LHIN by Sharon Osvald
The SE Local Health Integration Network is currently recruiting for a Patient and Family ...
Replies: 0
Views: 1421
Views: 1421
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1421
2018-02-16 21:25:40 by
Sharon Osvald
Family Physicians/Nurse Practitioners and Care Coordination by Sharon Osvald
Tonight's live chat comes to us from the South East Local Health Integration Network - if ...
Replies: 0
Views: 1408
Views: 1408
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1408
2018-02-06 17:03:20 by
Sharon Osvald
Advance Planning Tips by Sharon Osvald
If you are looking for more information about advance planning, power of attorney, power o...
Replies: 0
Views: 1742
Views: 1742
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1742
2017-12-14 11:00:34 by
Sharon Osvald
The Importance of Volunteers by Sharon Osvald
In our October 2017 Provincial Chat, participants shared about the importance of using vol...
Replies: 0
Views: 1814
Views: 1814
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1814
2017-10-30 22:06:03 by
Sharon Osvald
Dementia Friendly Communities by Sharon Osvald
In our October 2017 Provincial Live Chat, the topic of Dementia Friendly Communities was d...
Replies: 0
Views: 1346
Views: 1346
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1346
2017-10-30 22:00:15 by
Sharon Osvald
Geriatric Emergency Management Nurses by Sharon Osvald
In our October 2017 Provincial Live Chat, the topic of GEM Nurses came up. Has anyone expe...
Replies: 0
Views: 1439
Views: 1439
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1439
2017-10-30 21:56:24 by
Sharon Osvald
Book to Read? by Sharon Osvald
I haven't read this book so can't make a personal recommendation but am always on the look...
Replies: 0
Views: 1894
Views: 1894
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1894
2017-09-08 11:52:36 by
Sharon Osvald
November Live Chat Topic by Sharon Osvald
If you are unable to attend the Lived Experience Cafe "Live (typed) Chat event this Tuesda...
Replies: 3
Views: 2946
Views: 2946
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2946
2017-06-08 22:20:49 by
Sharon Osvald
Behavioural Supports and Where to find help by Sharon Osvald
The following is an article shared by one of our Provincial Lived Experience Advisory Memb...
Replies: 0
Views: 1939
Views: 1939
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1939
2017-04-25 12:35:14 by
Sharon Osvald
The Best of the Best! by Sharon Osvald
Reflecting on your lived experience, what are the "best of the best" services, websites an...
Replies: 0
Views: 1822
Views: 1822
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1822
2017-04-12 10:29:35 by
Sharon Osvald
October's Live Chat Discussion on Caregiver Education/Supports by Sharon Osvald
If you weren't able to attend our live chat but still want to share your thoughts: This mo...
Replies: 1
Views: 5568
Views: 5568
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5568
2017-05-02 20:01:22 by
Jenn
Provincial Dementia Strategy Discussion Paper by Sharon Osvald
You now have an opportunity to share your input on the development of a provincial dementi...
Replies: 1
Views: 2104
Views: 2104
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2104
2016-09-27 09:52:25 by
Sharon Osvald
Navigating Health Care by Sharon Osvald
This week in our provincial lived experience chat, we asked people to share their experien...
Replies: 2
Views: 5804
Views: 5804
2
5804
2016-09-27 09:46:36 by
Sharon Osvald
Turmeric for dementia by Anabell
Hi! Does Turmeric help in curing Dementia? I read an article ( http://www.best-alzheimers...
Replies: 4
Views: 3634
Views: 3634
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3634
2016-09-08 07:54:08 by
Edward Charette
Possible dementia. by Anabell
Hi, My mother is 65 years old. I surmise that she has serious memory problem. I think she...
Replies: 3
Views: 3215
Views: 3215
3
3215
2016-09-08 07:57:45 by
Edward Charette
Trust and Boundaries by Rosemunda
Trust and boundaries- what is your comfort level with paid care providers? Since last Sep...
Replies: 1
Views: 2883
Views: 2883
1
2883
2016-05-05 15:21:18 by
Sharon Osvald
What Has Your Experience Been Like with Emergency Rooms and Police? by Sharon Osvald
If you are unable to take part in May's live chat, we still want to hear - What has your e...
Replies: 1
Views: 3098
Views: 3098
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3098
2016-05-02 11:33:17 by
Rosemunda
First Chat Back - Share you views... by Sharon Osvald
Our Next Live Chat will take place the first Tuesday night of the month on Tuesday, April ...
Replies: 0
Views: 2739
Views: 2739
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2739
2016-04-01 14:36:43 by
Sharon Osvald
What IS working? by Sharon Osvald
If you missed our monthly live chat for May, you might want to consider sharing some of th...
Replies: 1
Views: 3231
Views: 3231
1
3231
2016-04-01 14:33:02 by
Sharon Osvald
Mobile Response Teams by Sharon Osvald
Hi all, I am looking for some stories and observations to pass on the Behavioural Support ...
Replies: 2
Views: 3405
Views: 3405
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3405
2016-04-01 14:21:40 by
Sharon Osvald
Managing the Holidays - the guilt and the chaos by Sharon Osvald
This is a post shared on behalf of Lived Experience Member, Dawng: "Xmas is an emotiona...
Replies: 1
Views: 3129
Views: 3129
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3129
2015-12-04 12:35:29 by
Sharon Osvald
Dementia and Depression Webinar by Sharon Osvald
Check out this video/webinar about Dementia and Depression - some great info and discussio...
Replies: 0
Views: 2917
Views: 2917
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2917
2015-10-30 12:17:05 by
Sharon Osvald
Provincial Patient Ombudsman Soon to Be Appointed by Sharon Osvald
Interesting Opportunity! Minister Hoskins announced this week that they are now seeking pu...
Replies: 0
Views: 3174
Views: 3174
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3174
2015-07-10 09:27:37 by
Sharon Osvald
Re: Respite and Health Care Tomorrow Survey Feedback by Sharon Osvald
This message is shared by request from Lived Experience Network member Rosemunda: Health...
Replies: 1
Views: 3003
Views: 3003
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3003
2015-06-01 18:35:06 by
Sharon Osvald
The Seven Deadly Emotions of Caregiving by Sharon Osvald
Here is a great article that helps us deal with some negative and very normal emotions th...
Replies: 0
Views: 3203
Views: 3203
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3203
2015-03-23 14:45:49 by
Sharon Osvald
Feedback from Feb Chat on Transitions by Sharon Osvald
Submitted by Email from Lived Experience Network Member, Janine: How transitions can be i...
Replies: 0
Views: 2963
Views: 2963
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2963
2015-03-05 12:02:26 by
Sharon Osvald
Financial Institution - the rest of the story by Sharon Osvald
Awhile back GingersHalo posted a discussion thread about her husband and his battle with a...
Replies: 2
Views: 4129
Views: 4129
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4129
2015-03-05 11:38:55 by
Sharon Osvald
Financial - Warning Surrendered Life Insurance Policies by GingersHalo
My husband surrendered his life insurance policies in November,while I was out of the coun...
Replies: 3
Views: 4369
Views: 4369
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4369
2015-02-25 00:25:27 by
Sharon Osvald
Memory Testing by Sharon Osvald
The Following Post was shared with me by email to be shared here by member Bluebird. So...
Replies: 5
Views: 2905
Views: 2905
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2905
2015-02-25 00:22:36 by
Sharon Osvald
Dignity - Response to Findings - By Dawn G. by Sharon Osvald
- Dignity – not only for the patient but for the family. Nothing can prepare you for the ...
Replies: 1
Views: 3180
Views: 3180
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3180
2015-02-05 15:25:24 by
Sharon Osvald
Holiday Grief by Sharon Osvald
Christmas and Holidays can be difficult for families whose loved ones are living with deme...
Replies: 0
Views: 3350
Views: 3350
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3350
2014-12-22 15:05:25 by
Sharon Osvald
What I Wish I Knew Before My Spouse/Parent Entered Long Term Care? by Sharon Osvald
Our last live chat we had some very good discussions about how some wished they had been b...
Replies: 4
Views: 3622
Views: 3622
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3622
2014-11-24 15:06:05 by
Sharon Osvald
Long Term Care by Anonymous
Share your advice and observations about the care and support received in long term care...
Replies: 7
Views: 3759
Views: 3759
7
3759
2014-11-24 11:44:04 by
Dawng
Great "Tangible" Tips for Dealing with various common issues by Sharon Osvald
Hi everyone, Several of you have asked me to share some tangible tips for dealing with va...
Replies: 1
Views: 3749
Views: 3749
1
3749
2014-11-18 15:04:26 by
Sharon Osvald
Heart of Homecare video by Vicky
https://www.youtube.com/watch?v=v_OFfqw_dFw...
Replies: 2
Views: 4502
Views: 4502
2
4502
2014-11-13 08:59:45 by
lrhare
Adjusting to Long Term Care- Webinar by Sharon Osvald
In our last Live Chat, we discussed how we could have been better prepared and know what t...
Replies: 0
Views: 2989
Views: 2989
0
2989
2014-11-12 14:40:37 by
Sharon Osvald
The Pleasure of Remembering by Sharon Osvald
Here's a little bit of my story and about the loss of being able to remember with the ones...
Replies: 0
Views: 3175
Views: 3175
0
3175
2014-10-10 21:17:53 by
Sharon Osvald
The Heart Break of Caring by Sharon Osvald
A very honest narrative of what it is like to be the daughter of two parents with dementia...
Replies: 0
Views: 2801
Views: 2801
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2801
2014-10-10 11:28:16 by
Sharon Osvald
Living with Dementia - Early Onset Part Two by Sharon Osvald
A look at early onset: http://www.youtube.com/watch?v=I4Z33OrAWho...
Replies: 0
Views: 2988
Views: 2988
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2988
2014-10-06 10:22:42 by
Sharon Osvald
A Look at Living with Dementia Part One by Sharon Osvald
Worth the watch: http://globalnews.ca/video/1589220/living-with-dementia-part-1-the-caregi...
Replies: 0
Views: 3277
Views: 3277
0
3277
2014-10-06 10:11:16 by
Sharon Osvald
What kept me from asking for help - Response to Findings by Dawn G by Sharon Osvald
- Although it was suggested that I contact the Alzheimer’s Society …. I did not, as I just...
Replies: 0
Views: 3215
Views: 3215
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3215
2014-09-08 22:43:40 by
Sharon Osvald
Navigation - in Response to Findings - By Dawn G by Sharon Osvald
- I loved the quote about woman who felt as is she was “running a business” trying to navi...
Replies: 0
Views: 3193
Views: 3193
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3193
2014-09-08 22:41:30 by
Sharon Osvald
Caregiver Health - Shared by bluebird by Sharon Osvald
https://www.youtube.com/watch?v=c6IL8WVyMMs This is a link to a video by Dr. Gabor Mate...
Replies: 0
Views: 2929
Views: 2929
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2929
2014-09-08 22:30:04 by
Sharon Osvald
Brighton, Ontario Navigation and Information Group by Sharon Osvald
If you are from the Brighton, Ontario area: Come to T.R.E.N.D.S., an informal group that m...
Replies: 0
Views: 3447
Views: 3447
0
3447
2014-07-21 12:52:36 by
Sharon Osvald
Power of Attorney Article by Sharon Osvald
Check out the latest article about some of the issues surrounding Power of Attorney. http...
Replies: 1
Views: 3168
Views: 3168
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3168
2014-07-21 10:06:39 by
Sharon Osvald
Interesting article by Db's
http://m.huffpost.com/us/entry/5515972?utm_hp_ref=fifty&ir=Fifty Copy and paste into yo...
Replies: 1
Views: 4299
Views: 4299
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4299
2014-07-21 10:05:29 by
Sharon Osvald
To find out or Not by Db's
If you could take the blood test now to detect Alzheimers, would you? and what would you d...
Replies: 10
Views: 4796
Views: 4796
10
4796
2014-06-10 22:51:39 by
Db's
The Long Term Care Homes Act? by Sharon Osvald
I am hearing from several people that the 'Long Term Care Homes Act" has some rules that a...
Replies: 0
Views: 3324
Views: 3324
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3324
2014-05-26 11:52:29 by
Sharon Osvald
A Summary of CBC's The Current Feature on Dementia by Sharon Osvald
In Case you missed it - A summary of CBC The Current's Feature on Dementia: https://uwater...
Replies: 0
Views: 3415
Views: 3415
0
3415
2014-05-25 22:46:46 by
Sharon Osvald
Using Technology for Residents in LTC by Db's
Yes I would love to see the facilities upgraded and get with the times. I know as I age, a...
Replies: 1
Views: 3409
Views: 3409
1
3409
2014-05-25 19:19:04 by
Sharon Osvald
Too Many Assessments! by bluebird
As my husband's Alzheimers has advanced I have tried to avail myself of more services, onl...
Replies: 3
Views: 4436
Views: 4436
3
4436
2014-05-25 19:08:21 by
Sharon Osvald
Treatment of Urinary Tract Infections by MissingMom
UTI's are also an ongoing problem & it has always been a battle to get them to get a sampl...
Replies: 2
Views: 4228
Views: 4228
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4228
2014-05-25 18:49:36 by
Sharon Osvald
The Admitting and Intake Process by MissingMom
Our intake (to Long Term Care) was terrible. It took almost 5 hours because they weren't v...
Replies: 2
Views: 4105
Views: 4105
2
4105
2014-05-25 18:26:52 by
Sharon Osvald
Questions for candidates by bluebird
The coming election offers us an opportunity to bring some attention to the issue of demen...
Replies: 1
Views: 3234
Views: 3234
1
3234
2014-05-25 18:13:26 by
Sharon Osvald
Resources by Sharon Osvald
Do you know of any good resources or articles to share about improving dementia care you'd...
Replies: 9
Views: 4983
Views: 4983
9
4983
2014-04-07 15:45:14 by
Sharon Osvald
Community Supports by CrossRoads
What advice would you give to community supports based on your lived experiences – i.e. Al...
Replies: 1
Views: 3468
Views: 3468
1
3468
2014-04-07 15:31:44 by
Sharon Osvald
I told you Already!! by Db's
Is there a favorite sentence or word that comes to mind that really upsets you when you ...
Replies: 2
Views: 3302
Views: 3302
2
3302
2014-04-02 22:42:41 by
Sharon Osvald
Hospital Experiences by CrossRoads
Share your advice and observations based on experiences in the hospital – i.e. in emergenc...
Replies: 6
Views: 3684
Views: 3684
6
3684
2014-03-27 20:57:46 by
cvh
Respite by CrossRoads
Share your advice and observations about respite care received – i.e. adult day care progr...
Replies: 13
Views: 4915
Views: 4915
13
4915
2014-03-25 22:08:28 by
Sharon Osvald
Transitions From Home, Hospital and to Long Term Care by CrossRoads
Often times, it is when moving between healthcare providers that people fall through the c...
Replies: 2
Views: 3777
Views: 3777
2
3777
2014-03-24 13:54:31 by
Sharon Osvald
Diagnosing Dementia Experience and Conversations with Doctors by CrossRoads
Share your advice and observations linked to your experiences dealing with doctors, nurses...
Replies: 4
Views: 4191
Views: 4191
4
4191
2014-03-24 13:49:24 by
Sharon Osvald
Retirement Homes and Assisted Living by CrossRoads
Share your advice and observations about the care and support while in Retirement Homes or...
Replies: 0
Views: 3297
Views: 3297
0
3297
2014-02-10 10:39:53 by
CrossRoads
Caregiver to Caregiver by Anonymous
Pass on your best advice what worked well for you as a caregiver. Share where did you find...
Replies: 10
Views: 1283
Views: 1283
10
1283
2016-04-01 14:13:36 by
Sharon Osvald
The real life costs of the by Anonymous
This post was shared by one of our lived experience cafe members , EJB: There is a rea...
Replies: 1
Views: 940
Views: 940
1
940
2015-12-04 12:31:08 by
Sharon Osvald