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Topic: Hospital Experiences
2014-02-10 10:38:05
CrossRoads Posts: 11
Joined: 0000-00-00
Share your advice and observations based on experiences in the hospital i.e. in emergency, at hospital to treat a physical need, day surgery, admitted for surgeries or treatment, when in hospital waiting for a
long term care bed to open.

2014-02-10 10:38:05
barb Posts: 3
Joined: 2014-03-19
I have found if you let the nurse, doctor, clerks, etc., be aware immediately that they are dealing with a patient with dimentia that they easily accommodate and adjust to that need. Otherwise you invite more confusion for everyone

2014-03-19 15:50:54
cvh

cvh

Posts: 6
Joined: 2014-03-19
I have found that even telling nurses, doctors repeatedly your spouse has Alzheimer's that they still don't get it. My husband was admitted recently for a suspected TIA. They kept asking him the same questions every half hour, and every half hour I had to remind the doctor that he has Alzheimer's that he doesn't normally know what day it is or the season or even where he is. I at one point asked them to get a new set of questions and had them write across the top of his chart in big bright letters that he has Alzheimer's. Then for lunch on the second day in hospital, they brought him soup and tea. That's all. I asked if he could get a sandwich and they said that was all he ordered. Huh? Does any one at the hospital get it? I had to go and try to track down food, on Christmas Eve so he could have something more than just soup.

2014-03-19 16:10:18
Sharon Osvald Posts: 120
Joined: 0000-00-00
Thanks for your comments Barb and CVH, I have to agree from my own story and from the feedback I am getting, there is definitely a serious problem when people with dementia need to enter hospitals for treatment for other health issues. Hospitals are just not set up for or staffed for persons with dementia. There has to be a better way of communicating the needs of these patients - ONCE to one person, on one form - that gets to every person who comes in contact with them. These are very frustrating issues.
After awhile you feel like no one cares and no one is really listening - when really it might not be the people but the system in which they work in. My 2 cents. :)

2014-03-20 13:02:52
MissingMom Posts: 11
Joined: 2014-03-09
I find that there are a lot of avenues in the medical field that there is very little patience with the elderly, hospitals included. They tend to treat them like children are are often too quick to dismiss them & not listen.

I have had a couple of trips to emerg with Mom & immediately got the feeling of Great...here comes another old lady. They need to have more understanding, especially if dementia is involved & realize that the patient is probably very upset & scared.

On one visit, I was left for several hours in the waiting room & was not allowed to go in to see my mother, nor was I being given updates as to what was going on, despite my repeated questions. I explained to them that Mom had dementia & was afraid & probably wouldn't be able to answer their questions properly. All they kept saying was have a seat in the waiting room, we will call you in soon. We arrived at 8p.m. & didn't leave until 7a.m. the next day. I wasn't allowed in or given information until an hour before leaving. When I did get in Mom was frantic and said she had been asking for me for hours.

If they had allowed me (as primary Care Giver) to be involved from the start, the visit probably could have been handled much quicker & with much less stress to my mother.

2014-03-23 13:27:09
Sharon Osvald Posts: 120
Joined: 0000-00-00
Missing Mom, another (sad but true) example of when the hospital did not use wisdom. I know when I have gone in I have insisted being with mom and have been allowed to join her after a few moments. It just makes sense..
Ryley, I liked your comment: "A trip to the hospital gets complicated right from the moment you pull up in the parking lot!"
SO TRUE. I HATE having to take Mom to the hospital for anything. It honestly makes me feel sick to my stomach. Last time we went for a planned procedure from her LTC home, we were able to have some support from a BSS Mobile Response team. It made a big difference to me. I am not sure where these teams are at in terms of how much support they can provide, but it would be worth asking your Long Term Care Home about next time you have a planned procedure.

2014-03-24 14:01:30
cvh

cvh

Posts: 6
Joined: 2014-03-19
When I take my husband in to the hospital, I don't even think twice about walking right in to where my husband is. I was asked to sit in the waiting room and I just said NO!

Then I just walked in to where my husband was. I said that they were going to need me to interpret and I didn't listen to them saying I had to wait in the waiting room. It may have come to blows but they weren't going to keep me out.

You can't be afraid to ignore the white coats and do what you know is right for you loved one. I used to work in the medical profession and I know that many people are afraid of Doctors and Nurses. Don't be. Your loved one has rights too.

2014-03-27 20:57:46