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Topic: Caregiver to Caregiver
2014-02-10 00:00:00
Anonymous Posts: 3
Joined:
Pass on your best advice what worked well for you as a caregiver. Share where did you find good quality services, care or just tips based on the lessons you have learned in dealing with responsive behaviours, loss and living as a caregiver.

2014-02-10 00:00:00
Anonymous Posts: 3
Joined:
You gotta love it when you arrive for a visit and you have talked your spouse into coming to help carry all of the thoughtful items that you ran all over town for, and upon seeing all that you brought, your mother asks you to thank your siblings for being SO thoughtful. THEN she smiles at your spouse and says " I love ya"
You take a deep breath and tell yourself that the next time your siblings are in town You will be there to happily carry in all their gifts!

2014-03-01 16:38:09
Sharon Osvald Posts: 120
Joined: 0000-00-00
I couldn't help but think your comment demonstrated two truths of caring for someone with dementia: 1. A sense of humour is needed for survival and 2. Caring for someone you love can be a thankless job. Thank you for sharing. :)

2014-03-03 13:46:18
Db's Posts: 1
Joined: 0000-00-00
I still don't know which daughter, the heck with the window. I agree humour goes a long way, never take it to heart, what your doing, I wish the other four daughters were doing. Bringing joy is important and comes in many forms. You are an amazing mom, grand mom and daughter.

2014-03-05 22:50:18
Sharon Osvald Posts: 120
Joined: 0000-00-00
I like this topic Caregiver to Caregiver. As we share our stories we realize we have so much in common and we are not alone - whether we are laughing or crying as caregivers. Thanks for sharing.

2014-03-07 19:30:18
Db's Posts: 3
Joined: 2014-03-08
Yes I would love to see the facilities upgraded and get with the times. I know as I age, and growing up with computers, I would love to be able to continue on with that. My mom loves Skype, but there is no wireless access in our Home at this time. We hire KDHS(amazing group from Kingston and Area ) to come in with their data plan and Ipad Mini. One day my mom was given my sisters cell phone to use, and she was trying to show me her Butter tart, so I know she associates me with Skype and loves it. I would love to see computer classes set up also.


2014-03-20 13:14:32
Sharon Osvald Posts: 120
Joined: 0000-00-00
Db's, I LOVE the suggestions about technology. What a fantastic idea to have Skype times made available to residents and WIFI - even if it was just for certain times like an activity. With people not being able to leave, how amazing for them to be able to see their grandchildren and children online. What a great way of keeping them from slipping away from people who love them before they need to. PS. I laughed at your butter tart story. Thanks for sharing.

2014-03-20 13:19:11
Sharon Osvald Posts: 120
Joined: 0000-00-00
Tomorrow is my mother's 85 Birthday. It is strange because almost all year long I can cope with her dementia, but I just cringe at holidays like Christmas and her Birthday. I feel like I am putting on a happy act those days - lying even - pretending to be celebrating. To cope these days, I always enlist a family member or friend to come with me and make it as joyous as possible. It is the one time I can't deny the losses we've experienced. This year my daughter (who is noticeably pregnant) is coming along. That should serve as a good distraction.

2014-04-07 15:43:32
Db's Posts: 9
Joined: 2014-03-23
I think with our mom, she feels the call bell is to be used in an emergency(old school). Since she has spent a lot of time in hospitals due to various surgeries, she may be identifying this call bell with a nurse bringing meds/blood pressure ect. She makes comments like oh they wont come to help me find that! Or they dont care I am crying. Is the call bell accessible, attached to her bed and handy? Can we have this info placed on her file and discussed during a meeting? That check in supervision during peak times usually between 9-2 in the evening is more present. Could we have the staff show mom they care during these times also by having them popping in knowing she is awake to say "oops did you need anything I thought I heard your call bell"? The staff could be cued by a family member that she is having a stressful late evening/early morning. It now seems some family members are ignoring late night calls, unplugging their phones and having them educated/given the number to call that mom is up late and upset and we need them to call the nurses. I feel once she is shown the staff will come, she might feel at ease to start using it. Creative story telling might work on this one, set up a planned call bell drill, to show mom someone will come. Repetition might work.


2014-04-21 15:32:55
Sharon Osvald Posts: 120
Joined: 0000-00-00
Once again - thanks for some good practical and simple advice!

2014-05-08 16:17:14
Sharon Osvald Posts: 120
Joined: 0000-00-00
A great suggestion was sent about using children's MP3 Player for people living with dementia and other cognitive impairment. I wonder if there are or will be "dementia" friendly electronics, cameras, appliances etc. being developed so we can help support our family members without having to make it "child-formatted". That would be helpful.

2016-04-01 14:13:36