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Topic: Resources
2014-03-03 16:01:21
Sharon Osvald Posts: 120
Joined: 0000-00-00
Do you know of any good resources or articles to share about improving dementia care you'd like to share?

2014-03-03 16:01:21
Sharon Osvald Posts: 120
Joined: 0000-00-00
One of the members of Dementia Crossroads sent this book recommendation - a great resource for caregivers:" I received Deborah Shouse's book "Love in the Land of Dementia" from my friend. I did accept this "gift" with some reluctance. When you live with Alzheimers 24/7, the last thing you need is yet another concentrated dose of it. The book lay on a shelf here before I had the courage to open it, but once I opened it, I could hardly put it down. It is written with poetry and with love. There are no "you should's" It is all about "this is what it is" and "here's my heart-felt perception" and "this is how I am dealing with it" -- complete with full gamut of emotions, which, by the way, are okay to feel. I found it validating, and it opened my heart a little wider to riding this particularly rough part of the journey with love and compassion. It is the story of a woman who has risen to the state of grace I am ultimately hoping for myself. I recommend it highly."

2014-03-07 19:40:14 Posts: 4
Joined: 2013-06-07
Here is an interesting article from the Netherlands about "dementia villages" which is a different way of looking at providing safe, supportive environments for people with dementia.

2014-03-12 09:56:29 Posts: 4
Joined: 2013-06-07
One of our leading medical journals JAMA just published some interesting information on caregiver supports. They have also posted a "Patient Handout" for caregivers, I would be interested to hear what you thought of it:

2014-03-12 18:25:19
Sharon Osvald Posts: 120
Joined: 0000-00-00
Dr. Seitz, First of all, I wonder what the wait list would be for a dementia village in Canada...what an amazing project.
Secondly, I enjoyed the article you shared about Caregiver Burden. From my own experience and the feedback I am getting from caregivers, this burden and weight is something that sneaks up on them so gradually that they often don't even know how close they are to the breaking point until they find themselves in crisis. I believe we need to begin seeing the caregiver as an extension of the patient - their needs are essential to both people's care.

2014-03-16 23:24:12
Sharon Osvald Posts: 120
Joined: 0000-00-00
Don't forget to join us in the first Lived Experience Online Chat tomorrow night (Tuesday, March 25th from 6:30-7:45pm)
We'll be talking about your suggestions for what would make a kinder, gentler and nicer elder health care experience?

2014-03-24 14:34:29
Db's Posts: 9
Joined: 2014-03-23
If you will have to copy and paste this link in your internet browser.....enjoy

2014-03-27 19:30:15
Sharon Osvald Posts: 120
Joined: 0000-00-00
One of the best tools on the caregiving shelf is a good sense of humour. Thanks for sharing. :)

2014-04-02 22:45:31
bluebird Posts: 6
Joined: 2014-03-04
I subscribe to several petition sites. I figure signing to something I can believe in is the least I can do toward change. And petition sites do get results. Imagine my surprise today when posted a petition for more support for dementia patients and caregivers in ONTARIO! WOW! You can be sure I signed. Hope a bunch more people do as well. I'm pasting this below. Hope it comes through...

Here in Ontario, 200,000 people are living with some form of dementia, including Alzheimer's. But a shortage of beds and resources means these people aren't getting the care they need.
Please sign the petition today! Tell Your MPP to Help People Suffering from Dementia
Take Action
please share
it helps!
Share on Facebook Share on Twitter Share via Email

Comprehensive, timely care is critical for dementia patients. Despite this, most Ontarians must wait between 4 and 8 months for long-term care, and too often are relegated to facilities lacking the resources to treat their conditions.

Tell your Member of Provincial Parliament to prioritize dementia care.

A shortage of resources means that many people with dementia are treated inhumanely, forced into physical restraints and put on anti-psychotic medication, even though these drugs are not clinically recommended for them and there are effective alternatives available.

There's a solution: Ontario's Parliament could pass a comprehensive dementia plan to ensure patients get the complete and ethical treatment they are entitled to. Such a plan would help patients by standardizing wait times and increasing the number of staff trained in dementia care.

People with dementia and their families deserve the best care available. Please ask the Ontario Parliament to pass a comprehensive dementia plan for a brighter tomorrow for everyone.

Thanks for all you do,

Rosa K.
Care2 and ThePetitionSite Team

2014-04-04 21:03:38
Sharon Osvald Posts: 120
Joined: 0000-00-00
Thanks so much for sharing that with everyone Bluebird!

2014-04-07 15:45:14