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Topic: Adult Day Programs? Share with the Ministry of Health and Long Term Care?
2017-06-08 22:16:50
Sharon Osvald Posts: 120
Joined: 0000-00-00
On Wednesday, June 21st from 6:30 -8:00PM, we will be holding a province-wide online (typed) chat on www.dementiacrossroads.ca as a part of the Behavioural Supports Ontario (BSO) Provincial Lived Experience Advisory. The topic for our chat conversation will be focusing on Adult Day Programs and we will be joined by special guest Michael Campo (Senior Policy Advisor) from the Ministry of Health & Long-Term Care. As you may know, the Ontario Dementia Strategy has made Dementia Day and Evening Programs a key area of investment in their strategy. In our past advisory conversations, we have heard a lot of positive feedback from people with lived experience about the value of these kinds of programs. For example, in our May Lived Experience video/teleconference meeting, members shared insightful communication strategies that are used between Adult Day Program staff and family care partners/caregivers such as communication binders and living diaries. The purpose of this chat will be to learn more about whats working well in adult day programs and what barriers may need to be addressed to enhance the programs.

More specifically, we will be asking the following questions:
1. What elements make an adult day program successful?
2. What barriers or challenges have you faced in accessing adult day programs?
3. What services are not currently offered within adult day programs, but should be?
4. What advice would you give to policy makers to enhance access to or enhance the impact of adult day programs in your community?

What an amazing opportunity this is to share our lived experiences with those who will be planning these kind of programs! We hope you will join us and look forward to your feedback.



2017-06-08 22:16:50
Sharon Osvald Posts: 120
Joined: 0000-00-00
If you also wish to send your answers by email you can do that too. My email is: sosvald@alzking.com

2017-06-08 22:24:37
Sharon Osvald Posts: 120
Joined: 0000-00-00
This comment was shared (with permission) by one of our lived experience advisors:
" I have some very strong feelings about the need here in our Waterloo region. We have an excellent program without standing stuff but the funding has been so inadequate as the need has grown.

I have no idea how my husband and I would survive this journey if we did not have this support system. I truly believe I would be unable to carry-on working as well as being an affective caregiver.
The number for a respite overnight beds and the increased acuity of the people using the day program all need to be addressed when the funding decisions are being made.

The fact that Ray attends the day program at the same location that he goes for Respite is extremely valuable. He feels he's a volunteer when he goes and because he has frontal lobe dementia this makes him willing to go and he feels he has purpose. As his behaviours are changing it is becoming more difficult though because there just isn't enough staff to deal with his increased needs and the safety and acuity of the other people attending the program.

Thank you for the forum to get these issues out so we can improve the care for our own loved ones as well as those that will need the services in the future."


2017-06-20 13:34:44