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Topic: what do you do when a parent dies at home
2018-02-04 18:32:12
lauriejones Posts: 1
Joined: 0000-00-00
My sisters and I are caring for our father AT HOME.

He has Alzheimer Dementia. He told us he wants to die at home and we are trying to make his wish come true.

He is no longer mobile so cannot attend Doctor appointments in Toronto. Which leaves us adrift. So we are trying on our own resources (which include: 40 hr private agency care and the balance by family) .

We wonder what you are supposed to do when someone dies at home in Toronto?


2018-02-04 18:32:12
Sharon Osvald Posts: 120
Joined: 0000-00-00
Hello Laurie,

Thanks so much for posting your question. (Sorry for my delay responding.) I do not know this answer but will pass this along to a few of our lived experience members and some health care professionals who will be able to help answer this question. I will post as soon as I get their responses. In the meantime, wishing you and your family all the best as you provide love, care and support.

2018-02-06 16:47:46
Sharon Osvald Posts: 120
Joined: 0000-00-00
Hi again Laurie, I reached out to some people from this Lived Experience Advisory from the Toronto area. They have sent me some links and information, but it would be best if I could send you the information by email - since it is a little long for a chat post format. Can you please email me at sosvald@alzking.com and I then I can email you what they shared? Thanks for reaching out to dementiacrossroads.ca We are glad you are here.

2018-02-06 20:55:28
Sharon Osvald Posts: 120
Joined: 0000-00-00
Here is some feedback I received: I am assuming you are referring to Toronto proper, if this is the case you would need to the appropriate LHIN Home and Community Care.
Each H&CC will have their respective Palliative teams and they are a great resource to help connect families to the right resources.
You just need to call the intake team. The Primary care physician should be able to refer and provide and additional info to you if your dad is still under some care of a physician.

If there is another LHIN they live in it can be accessed through either one of the links below.

Toronto LHIN
https://healthcareathome.ca/torontocentral/en/Contact-Us
If you aren't sure what area (Local Health Integration Network ) you live in, you can type in your postal code here: http://lhins.on.ca/ and find contacts that way.

2018-02-08 12:38:57
Sharon Osvald Posts: 120
Joined: 0000-00-00
More input Laurie: There are home visiting teams in Toronto both for family medicine and palliative care. At Mt. Sinai Hospital they have the Temmy Latner Palliative Care team: : http://www.mountsinai.on.ca/care/tlcpc/temmy-latner-centre-for-palliative-care

Feel free to phone or email me if you do not understand what I am sharing and need more info.

2018-02-08 12:43:07
Sharon Osvald Posts: 120
Joined: 0000-00-00
One more resource sent to me from a lived experience advisory member that might be helpful.
Here is some information about Advanced Planning in Canada. Just cut and paste these links into your internet search engine. Hope this helps.

http://www.advancecareplanning.ca/

2018-02-08 12:46:03
Sharon Osvald Posts: 120
Joined: 0000-00-00
Here is one more resource for anyone who is looking to help navigate any kind of care or supports for seniors. Visit www.thehealthline.ca. The site will show you a map and you can click on your area or enter your postal code to find services in your region. Under the Title “Your Health” you will find “Seniors”. Click on that link for a list of all kinds of services and supports. You will also see a title “Health Topics” that will lead you to the title “End of Life Care.” Hope this is helpful! :)

2018-02-09 13:21:30