News

Members:

Text Size:  A  A
Our Discussion Forum
Share Your Thoughts
Provincial Live Chat
Province-wide live chats will take place every other month on the third Wednesday from 6:30-8PM. See Ontario page for details.
Login HereSign Up
Resource Exchange Update
An opportunity for those who plan and provide services for older adults in SE Ontario to receive the findings of our Lived Experience Network face to face, and through phone / online conversations. 
Learn More
SE Ontario Live Chat
Evening South Eastern Ontario Chats will take place every first Tuesday of the month from 6:30-8PM.
Login HereSign Up

October/November 2017 Resource Exchange - Conversation Summaries

Be sure to check out the Resource Exchange Summaries for October/November 2017. Find out what matters to people who matter!

Visit the Resource Exchange page on www.dementiacrossroads.ca  and follow the links.

~Sharon

 

Comments
Login to post comments.

December Chat Topics

Be sure to check out both the home page and Ontario page for December's upcoming chat topics!

We will be discussing ageism and stigma and how this affects both our culture in general and our health care delivery in our SE Ontario (typed) chat on Tuesday, December 5th and then on Wednesday December 20th join us for a province-wide conversation about the Senior Friendly Initiative and the Senior Friendly 7 Topics!

Hope you can make it! Looking forward to your feedback.

~Sharon

Comments
Login to post comments.

Don't Miss Next Week's SE Ontario Lived Experience Network Chat:

Join us November 7th at our new time from 7:00-8:30PM

Our November SE Ontario Lived Experience Café (Typed) Chat topic comes from Krystal Mack, Seniors Mental Health Inpatient Program Manager of Hospital Mental Health, Providence Care. In order to better understand the lived experience of family caregivers, she asks:

“How do we improve communication between family caregivers and the health care providers who provide care to their family members/friends?

Comments
Login to post comments.

Don't Miss Next Week's SE Ontario Lived Experience Network Chat:

Join us November 7th at our new time from 7:00-8:30PM

Our November SE Ontario Lived Experience Café (Typed) Chat topic comes from Krystal Mack, Seniors Mental Health Inpatient Program Manager of Hospital Mental Health, Providence Care. In order to better understand the lived experience of family caregivers, she asks:

“How do we improve communication between family caregivers and the health care providers who provide care to their family members/friends?"

As you reflect on your many different experiences receiving care as a family caregiver/ friend (in the home, family doctor, adult day program, hospital or Long term care etc.), come prepared to share some of the communication gaps you have experienced as well as examples of excellent communication, why it was so helpful and how communication can be improved.

Comments
Login to post comments.

What Matters to People Who Matter?

During August and September, the SE Ontario Lived Experience Network had some great  advisory conversations both in our face to face meetings and our September online Lived Experience Cafe (Type) Chat. The summaries of these conversations is online now on our Resource Exchange Page.

 

Find out what mattered to people who matter. 

Visit: http://dementiacrossroads.ca/discussion-archives.php

 

AND tell everyone else to read it too.

 

 

Comments
Login to post comments.

Hi Everyone, In our upcoming September 5th live chat event we have the unique opportunity to give direct feedback to the SE LHIN about the supports needed to care for someone living in their home. Make sure you join in for this chat OR EMAIL your answers to sosvald@alzking.com.

Can't wait to hear your feedback: 

Comments
Login to post comments.

June and July 2017 Resource Exchange - Conversation Summaries

 

Find out what mattered to those living with dementia and their family/care partners living in SE Ontario based on our discussions in June and July 2017. Click the link below to the SE Lived Experience Resource Exchange and spread the word!:

http://dementiacrossroads.ca/discussion-archives.php?postID=65&article=June-July-2017-Resource-Exchange-Findings

For more information about the SE Ontario Lived Experience Network, email Sharon Osvald, Lived Experience Facilitator at sosvald@alzking.com.

Hope you are enjoying your summer!

~Sharon 

Comments
Login to post comments.

Summer Update

 

I hope you have been able to enjoy some sunshine. I want to inform you about some things that will be happening over the summer.

Live (Typed) Chat Summer Break: There will not any South Eastern Ontario (or provincial) live (typed) chat events in July and August. Many of you are taking holidays, so we have decided to break for the summer. We will resume on Tuesday, September 5, 2017 with a live (typed) chat on dementiacrossroads.ca from 6:30-8:00pm. (Topic to Be Announced.) If any of you would like to participate in a provincial video/teleconference, we will be meeting on Tuesday, July 25, 2017 from 12:30- 2:00pm. Check the Ontario page on dementiacrossroads.ca or email me for more information. Remember, if online “chats” are not for you, you can always email your lived experience input or give me a call at 613-475-9943.

Vacation: Please note I will be on vacation starting next week, from July 3- July 21, 2017 and will be back in the office on Monday, July 24, 2017. If you need to contact me, please send an email and I will reply as soon as I return.

In Your Area: Please check the website calendar to see when I will be in your area. So far, I have plans to visit Brighton, Perth and Bancroft in the coming months. It would be great to see you in person.

Wishing you all have a safe and wonderful summer!

~ Sharon Osvald, Lived Experience Facilitator

Comments
Login to post comments.

More June News!

Hello Lived Experience Advisors,

I just want to mention two more items:

1. The Lived Experience Resource Exchange for April and May 2017 is ready & online at http://dementiacrossroads.ca/discussion-archives.php . This is a summary of all of the key findings of all the online, face to face and telephone conversations that have taken place with the SE Ontario Lived Experience Network for this two month period. Find out what matters to people who matter!

2. Please be aware of a very important Provincial Live (typed) Chat conversation that will be taking place. On Wednesday, June 21st from 6:30 -8:00PM, we will be holding a province-wide online (typed) chat on www.dementiacrossroads.ca as a part of the Behavioural Supports Ontario (BSO) Provincial Lived Experience Advisory.

The topic for our chat conversation will be focusing on Adult Day Programs and we will be joined by special guest Michael Campo (Senior Policy Advisor) from the Ministry of Health & Long-Term Care. As you may know, the Ontario Dementia Strategy has made Dementia Day and Evening Programs a key area of investment in their strategy. In our past advisory conversations, we have heard a lot of positive feedback from people with lived experience about the value of these kinds of programs. For example, in our May Lived Experience video/teleconference meeting, members shared insightful communication strategies that are used between Adult Day Program staff and family care partners/caregivers such as communication binders and living diaries. The purpose of this chat will be to learn more about what’s working well in adult day programs and what barriers may need to be addressed to enhance the programs. 

More specifically, we will be asking the following questions:

1.What elements make an adult day program successful?

2.What barriers or challenges have you faced in accessing adult day programs?

3.What services are not currently offered within adult day programs, but should be?

4.What advice would you give to policy makers to enhance access to or enhance the impact of adult day programs in your community?

What an amazing opportunity this is to share our lived experiences with those who will be planning these kind of programs! We hope you will join us and look forward to your feedback.

 

Kind Regards,

Sharon Osvald, Lived Experience Facilitator (South Eastern Ontario and Behavioural Suppports Ontario)

Comments
Login to post comments.

June 2017 Lived Experience News

Hello SE Ontario Lived Experience Advisors,

 

Did I mention how proud I am of the work of the SE Ontario Lived Experience Network?  I am very proud! Check out these two additions to dementiacrossroads.ca - “Lived Experience Network Report April 2017” on the Resource Exchange page and “All Chat Topic Summaries Mar 2014- Present” on the chat page. These documents display a great deal of amazing work has happened both this year and since the Lived Experience Network began in 2013. Please have a look and thank you for your involvement exchanging your knowledge and partnering for change.

 

Live Chat Reminder: I also want to remind you of next week’s Live Chat June 6, 2017 – Lived Experience Café Live (Typed) Chat on www.dementiacrossroads.ca from 6:30-8:00PM. (See the attached poster for the topic and details…including our special guest Maia (bluebird). This is going to be a really special chat so I hope you join in. Many of you will be familiar with Maia (Bluebird) from In My Shoes workshops and our online chats. She was our first lived experience advisor to join in 2013 and will be co-facilitating and sharing some of the things that helped her to cope as a wife and care partner of someone living with dementia. Come prepared to learn and to share some of your coping tips and “What Keeps You Going?”

 

And once the storm is over, you won’t remember how you made it through, how you managed to survive. You won’t even be sure whether the storm is really over. But one thing is certain: When you come out of the storm, you won’t be the same person who walked in. That’s what this storm’s all about.” Haruki Murakami

 

Remember, if online “chats” are not for you, you can still participate in answering the attached questions by emailing your  input or by giving me a call at 613-475-9943.

Please sign up for Meet Me in the Middle Lunch – Tuesday, June 27th: We have had some positive responses from people and will be planning to hold a “Meet Me in the Middle” lunch on Tuesday, June 27th at Minos Village Restaurant on 2762 Princess Street, Kingston, Ontario at 12 noon. The goal of this event is to simply meet others (some who you may have met online but not in person) for some conversation and fun. Each person will be responsible to pay for their own lunch. If you would like to come, please email or phone me by: Monday, June 12th.

Also, be sure to check the Ontario page on dementiacrossroads.ca for information about how you can participate in Provincial conversations too. Looking forward to hearing your thoughts and suggestions for change.

Kind Regards,

 

Sharon Osvald
Lived Experience Facilitator (South East & Behavioural Supports Ontario)

Providence Care Seniors Mental Health and Behavioural Support Services
in partnership with the Alzheimer Societies of S.E. Ontario &

BSO Provincial Coordinating Office in partnership with brainXchange

www.dementiacrossroads.ca

Email: sosvald@alzking.com

Exchanging Knowledge, Partnering for Change

 

 

Comments
Login to post comments.

February/March Lived Experience Findings are Posted!

 

If you haven't already checked, please note the summaries of all conversations with the SE Ontario Lived Experience Network for February and March 2017 are posted on:

http://dementiacrossroads.ca/findings.php

 

The Lived Experience Resource Exchange for February/March 2017 is a summary of face to face conversations, two SE Ontario live (typed) chat conversations and one provincial live (typed) chat event. These conversations involve input from 41 people from across South Eastern Ontario. 36 people were spouses, adult children, family or friends and 5 people were older adults living with dementia, mental health or other neurological disorders.

If you would like to be added to our email list or to learn more about the SE Ontario Lived Experience Network or the BSO Provincial Lived Experience Advisory, email Lived Experience Facilitator, Sharon Osvald at sosvald@alzking.com.

 

Find out what matters to people who matter!

Comments
Login to post comments.

April 2017 Lived Experience News

 

 If this is your first connection with us, welcome you to the SE Ontario Lived Experience Network. Thank you for your willingness to share your thoughts and observations about your experiences with the health care system.

I would like to make you aware of three things: 1. What’s happening Online 2. What’s happening with the Lived Experience Network (both here in the South East and Provincially) and 3. The location of upcoming face to face advisory/round table conversations.

  1. What’s Happening Online? Tuesday, April 4th is date of our next SE Ontario Live (typed) Chat Advisory Conversation - coming up next week from 6:30-8PM at www.dementiacrossroads.ca . Interesting point, this is also National Family Caregiver Day so Congratulations to you! We will be discussing the use of technology in caregiving.  If you cannot attend or are not comfortable with communicating this way, you can still participate in this conversation by emailing me your answers to our live chat topic question.

Looking forward to your feedback. If this is the first time you’ve spoke with me (outside a face to face meeting) and/or you have never participated in a live (typed) chat before, visit www.dementiacrossroads.ca/chat.php for instructions. Remember when you join the site if you would like to maintain your privacy, use a nickname as your username. The username you choose will be displayed to the other online/chat participants. “See” you online. Feel free to email me if you have any questions or want some help getting logged on.

  1. What’s Happening with the Lived Experience Network?

Here in the South East, our advisory community continues to grow. In the past few months I have visited both Alzheimer Society Support Groups, community groups and Long Term Care Home Family Councils for face to face advisory conversations in Trenton, Brighton, Kingston, Belleville and West Lake, Ontario. As you provide your input and observations, I am sharing it in a bi-monthly report called The Resource Exchange (that you can find on the dementiacrossroads.ca website). I also participate in several regional committees, short term project teams as they come up, and am part of three Long Term Care home Behavioural Support Collaboratives (covering the entire South East region), where I am sharing your observations and suggestions for change based on what is important to you. Finally, please see the attached revised handout explaining the goals of the Lived Experience Network. Please share it widely!

Provincially, the Lived Experience Advisory is also doing exciting work. My hours have increased from working one day a week to two days a week and you will also see my job title has changed to Lived Experience Facilitator to reflect these changes. We were able to add our voice to plans for the developing  Provincial Dementia Strategy and I participated as part of the Dementia Capacity Planning Clinical Advisory. Finally, last week four lived experience advisors and myself were able to take the Teepa Snow Positive Approach to Care Trainer course and look forward to supporting work that provides much needed education and hands on skills to family/care partners.

  1. Where Will I Be Meeting In Person?

Thursday, April 20th – Tweed at Moira Place at 10AM

Thursday, April 20th – Deseronto at the Wellness Centre at 2:00PM

Friday, May 12th – Napanee at the Lennox & Addington Seniors Outreach Services at 10AM

If you’d like me to come and meet with your group or have any questions about these dates, please send me an email. I’m looking forward to connecting with you!

With thanks,

Sharon Osvald
Lived Experience Facilitator (South East & Behavioural Supports Ontario)

Providence Care Seniors Mental Health and Behavioural Support Services
in partnership with the Alzheimer Societies of S.E. Ontario &

BSO Provincial Coordinating Office in partnership with brainXchange

www.dementiacrossroads.ca

Email: sosvald@alzking.com
Home office: 613-475-9943

Comments
Login to post comments.