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IMPORTANT announcement and change to the SE Ontario Lived Experience Network

Hello SE Ontario Lived Experience Network Advisors,

It is hard to believe that five years ago this September, I was given the opportunity and privilege of leading the SE Ontario Lived Experience Network. In that time, over 900 people with lived experiences have been able to share their stories and input with hopes of exchanging knowledge and partnering for change. The Lived Experience Café through www.dementiacrossroads.ca has over 170 members who participate in South Eastern Ontario and province-wide live typed chats.

So, it is with a mix of sadness and excitement I announce to you that on July 27th  I will be leaving my role as the SE Ontario Lived Experience Facilitator. During our many conversations over the past years, you have shared of the need for system navigation along with early access to education and services. As of August 1, 2018, I will be working three days a week as a First Link Care Navigator with the Alzheimer Society of Hastings Prince Edward.

I will continue in my role as BSO Provincial Lived Experience Facilitator, leading those monthly advisory conversations/chats and have also made myself available to assist with SE Ontario live chats and our dementia crossroads online community as needed. Along with the leadership team, I will keep you informed during this transition time. Please feel free to email me if you have any questions or comments. The date for the next SE Ontario live chat is Tuesday, September 4th at 7PM.

I want to send out a huge and heartfelt thanks to all of you. It has been an honour getting to know you, to see how strong and passionate you were – even when you didn’t feel strong or passionate. I have learned so much and although I will no longer be available to do face to face meetings, I hope we can continue to partner through provincial meetings/chats, other virtual projects and potentially through Teepa Snow Positive Approach to Care family care partner education workshops as they arise.

 

Wishing you all the best,

Sharon Osvald

Lived Experience Facilitator

Providence Care Seniors Mental Health/South East Behavioural Support Services &

Behavioural Supports Ontario Provincial Coordinating Office

n partnership with:

The Alzheimer Societies of SE Ontario &

brainXchange

Exchanging Knowledge, Partnering for Change

 

 

 

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April-May 2018 SE Ontario Lived Experience Resource Exchange Summary

 

 

Find out what mattered to people living with dementia/similar diagnoses and their family care partners in SE Ontario. The conversation summaries for the months of April and May 2018 are online at https://dementiacrossroads.ca/discussion-archives.php 


CHECK IT OUT!

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Spring and Summer News and Invites

Good Afternoon SE Ontario Lived Experience Advisors,

I hope that you are enjoying the sunny Spring weather we have been having. A warm welcome to any newcomers who have recently become involved in the Lived Experience Network. I want to make you all aware of some of the opportunities that exist to share your stories and ideas for system “change” this Spring.

Please see information and attachments for:

  1. Live Typed Chat – June 5, 2018 7-8:30PM
  2. A Call for Interest for a “Meet Me in the Middle” Luncheon on Friday, June 22 in Kingston
  3. Dates and Locations for Advisory Conversations and Education Dates
  4. Adapted Summer Schedule and Chat/Meeting times

1.Live Typed Chat: Please join us Tuesday, June 5, 2018 on www.dementiacrossroads.ca from 7-8:30PM for the lived experience café live typed chat event: Our SE Ontario Lived Experience Network Live Chat Topic for Tuesday, June 5th, 2018, comes from Cathy Sturdy Smith, Manager, Specialized Geriatric Service CMHA, Waterloo Wellington and Pam Hamilton, Clinical Advisor and P.I.E.C.E.S. Curriculum and Education Consultant. (See Chat page for poster).

TOPIC:

The current P.I.E.C.E.S. Learning and Development Program for health care professionals is undergoing revisions. In order to ensure the revisions are reflective of the needs and experiences of those with lived experience, the P.I.E.C.E.S Redesign Coordinating Group is seeking feedback and insight from the SE Ontario Lived Experience Network to assist in developing a greater emphasis on the importance of engaging and relationship building with the person, family care partner, all TEAM members.

Question: Reflecting, on your lived experiences, what specific moments, experienced along your journey, would you want included in the P.I.E.C.E.S. classroom learning discussions? Can you suggest reflective questions to ask learners for small group discussions? If you are not comfortable with the “chat technology”, I am happy to walk through it with you ahead of time or you can send me your answers by email and I will add them to the summary.

2.Meet Me In the Middle: From time to time SE Ontario Lived Experience Network participants like to get together in person for a luncheon we call “Meet Me in the Middle” at Mino’s Restaurant in Kingston. We are proposing to meet on June 22nd at 12:30pm. Please let me know if you are interested in attending!

3.Dates and Locations for Advisory Meetings and Education: Please see the dementiacrossroads.ca calendar for dates and locations when I will be in your area hosting face to face advisory meetings or education events. In June, I will be in Brockville, Perth, Smiths Falls and Brighton.

4.Summer Schedule and Chat/Meeting Times: Please note, due to people’s summer holidays and schedules, we will not be holding any live chats for SE Ontario Lived Experience Network or the BSO Provincial Lived Experience Advisory. I will also be working an altered schedule: In July: working July 16-27 and in August:  working August 13-31 only. We will continue to be hold our BSO Provincial Lived Experience video/teleconference meeting in July if you wish to take part.

I hope you will consider taking part in June’s chat or to email me your thoughts and feedback. I look forward to hearing your collective wisdom!

With thanks,

Sharon Osvald,

Lived Experience Facilitator Providence Care Seniors Mental Health/South East Behavioural Support Services &Behavioural Supports Ontario Provincial Coordinating Office In partnership with:The Alzheimer Societies of SE Ontario &brainXchange

www.dementiacrossroads.ca

Email: sosvald@alzking.com

Home office: 613-475-9943

Exchanging Knowledge, Partnering for Change

 

 

 

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February- March 2018 Resource Exchange - Conversation Summaries

Be sure to check out the Resource Exchange Summaries for February - March 2018. Find out what matters to people who matter!

Visit the Resource Exchange page on www.dementiacrossroads.ca  and follow the links.

~Sharon

 

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December Chat Topics

Be sure to check out both the home page and Ontario page for December's upcoming chat topics!

We will be discussing ageism and stigma and how this affects both our culture in general and our health care delivery in our SE Ontario (typed) chat on Tuesday, December 5th and then on Wednesday December 20th join us for a province-wide conversation about the Senior Friendly Initiative and the Senior Friendly 7 Topics!

Hope you can make it! Looking forward to your feedback.

~Sharon

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Don't Miss Next Week's SE Ontario Lived Experience Network Chat:

Join us November 7th at our new time from 7:00-8:30PM

Our November SE Ontario Lived Experience Café (Typed) Chat topic comes from Krystal Mack, Seniors Mental Health Inpatient Program Manager of Hospital Mental Health, Providence Care. In order to better understand the lived experience of family caregivers, she asks:

“How do we improve communication between family caregivers and the health care providers who provide care to their family members/friends?

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Don't Miss Next Week's SE Ontario Lived Experience Network Chat:

Join us November 7th at our new time from 7:00-8:30PM

Our November SE Ontario Lived Experience Café (Typed) Chat topic comes from Krystal Mack, Seniors Mental Health Inpatient Program Manager of Hospital Mental Health, Providence Care. In order to better understand the lived experience of family caregivers, she asks:

“How do we improve communication between family caregivers and the health care providers who provide care to their family members/friends?"

As you reflect on your many different experiences receiving care as a family caregiver/ friend (in the home, family doctor, adult day program, hospital or Long term care etc.), come prepared to share some of the communication gaps you have experienced as well as examples of excellent communication, why it was so helpful and how communication can be improved.

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What Matters to People Who Matter?

During August and September, the SE Ontario Lived Experience Network had some great  advisory conversations both in our face to face meetings and our September online Lived Experience Cafe (Type) Chat. The summaries of these conversations is online now on our Resource Exchange Page.

 

Find out what mattered to people who matter. 

Visit: http://dementiacrossroads.ca/discussion-archives.php

 

AND tell everyone else to read it too.

 

 

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Hi Everyone, In our upcoming September 5th live chat event we have the unique opportunity to give direct feedback to the SE LHIN about the supports needed to care for someone living in their home. Make sure you join in for this chat OR EMAIL your answers to sosvald@alzking.com.

Can't wait to hear your feedback: 

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June and July 2017 Resource Exchange - Conversation Summaries

 

Find out what mattered to those living with dementia and their family/care partners living in SE Ontario based on our discussions in June and July 2017. Click the link below to the SE Lived Experience Resource Exchange and spread the word!:

http://dementiacrossroads.ca/discussion-archives.php?postID=65&article=June-July-2017-Resource-Exchange-Findings

For more information about the SE Ontario Lived Experience Network, email Sharon Osvald, Lived Experience Facilitator at sosvald@alzking.com.

Hope you are enjoying your summer!

~Sharon 

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Summer Update

 

I hope you have been able to enjoy some sunshine. I want to inform you about some things that will be happening over the summer.

Live (Typed) Chat Summer Break: There will not any South Eastern Ontario (or provincial) live (typed) chat events in July and August. Many of you are taking holidays, so we have decided to break for the summer. We will resume on Tuesday, September 5, 2017 with a live (typed) chat on dementiacrossroads.ca from 6:30-8:00pm. (Topic to Be Announced.) If any of you would like to participate in a provincial video/teleconference, we will be meeting on Tuesday, July 25, 2017 from 12:30- 2:00pm. Check the Ontario page on dementiacrossroads.ca or email me for more information. Remember, if online “chats” are not for you, you can always email your lived experience input or give me a call at 613-475-9943.

Vacation: Please note I will be on vacation starting next week, from July 3- July 21, 2017 and will be back in the office on Monday, July 24, 2017. If you need to contact me, please send an email and I will reply as soon as I return.

In Your Area: Please check the website calendar to see when I will be in your area. So far, I have plans to visit Brighton, Perth and Bancroft in the coming months. It would be great to see you in person.

Wishing you all have a safe and wonderful summer!

~ Sharon Osvald, Lived Experience Facilitator

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More June News!

Hello Lived Experience Advisors,

I just want to mention two more items:

1. The Lived Experience Resource Exchange for April and May 2017 is ready & online at http://dementiacrossroads.ca/discussion-archives.php . This is a summary of all of the key findings of all the online, face to face and telephone conversations that have taken place with the SE Ontario Lived Experience Network for this two month period. Find out what matters to people who matter!

2. Please be aware of a very important Provincial Live (typed) Chat conversation that will be taking place. On Wednesday, June 21st from 6:30 -8:00PM, we will be holding a province-wide online (typed) chat on www.dementiacrossroads.ca as a part of the Behavioural Supports Ontario (BSO) Provincial Lived Experience Advisory.

The topic for our chat conversation will be focusing on Adult Day Programs and we will be joined by special guest Michael Campo (Senior Policy Advisor) from the Ministry of Health & Long-Term Care. As you may know, the Ontario Dementia Strategy has made Dementia Day and Evening Programs a key area of investment in their strategy. In our past advisory conversations, we have heard a lot of positive feedback from people with lived experience about the value of these kinds of programs. For example, in our May Lived Experience video/teleconference meeting, members shared insightful communication strategies that are used between Adult Day Program staff and family care partners/caregivers such as communication binders and living diaries. The purpose of this chat will be to learn more about what’s working well in adult day programs and what barriers may need to be addressed to enhance the programs. 

More specifically, we will be asking the following questions:

1.What elements make an adult day program successful?

2.What barriers or challenges have you faced in accessing adult day programs?

3.What services are not currently offered within adult day programs, but should be?

4.What advice would you give to policy makers to enhance access to or enhance the impact of adult day programs in your community?

What an amazing opportunity this is to share our lived experiences with those who will be planning these kind of programs! We hope you will join us and look forward to your feedback.

 

Kind Regards,

Sharon Osvald, Lived Experience Facilitator (South Eastern Ontario and Behavioural Suppports Ontario)

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