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The Lived Experience Cafe chat

June 2017

Summer Update

 

I hope you have been able to enjoy some sunshine. I want to inform you about some things that will be happening over the summer.

Live (Typed) Chat Summer Break: There will not any South Eastern Ontario (or provincial) live (typed) chat events in July and August. Many of you are taking holidays, so we have decided to break for the summer. We will resume on Tuesday, September 5, 2017 with a live (typed) chat on dementiacrossroads.ca from 6:30-8:00pm. (Topic to Be Announced.) If any of you would like to participate in a provincial video/teleconference, we will be meeting on Tuesday, July 25, 2017 from 12:30- 2:00pm. Check the Ontario page on dementiacrossroads.ca or email me for more information. Remember, if online “chats” are not for you, you can always email your lived experience input or give me a call at 613-475-9943.

Vacation: Please note I will be on vacation starting next week, from July 3- July 21, 2017 and will be back in the office on Monday, July 24, 2017. If you need to contact me, please send an email and I will reply as soon as I return.

In Your Area: Please check the website calendar to see when I will be in your area. So far, I have plans to visit Brighton, Perth and Bancroft in the coming months. It would be great to see you in person.

Wishing you all have a safe and wonderful summer!

~ Sharon Osvald, Lived Experience Facilitator

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More June News!

Hello Lived Experience Advisors,

I just want to mention two more items:

1. The Lived Experience Resource Exchange for April and May 2017 is ready & online at http://dementiacrossroads.ca/discussion-archives.php . This is a summary of all of the key findings of all the online, face to face and telephone conversations that have taken place with the SE Ontario Lived Experience Network for this two month period. Find out what matters to people who matter!

2. Please be aware of a very important Provincial Live (typed) Chat conversation that will be taking place. On Wednesday, June 21st from 6:30 -8:00PM, we will be holding a province-wide online (typed) chat on www.dementiacrossroads.ca as a part of the Behavioural Supports Ontario (BSO) Provincial Lived Experience Advisory.

The topic for our chat conversation will be focusing on Adult Day Programs and we will be joined by special guest Michael Campo (Senior Policy Advisor) from the Ministry of Health & Long-Term Care. As you may know, the Ontario Dementia Strategy has made Dementia Day and Evening Programs a key area of investment in their strategy. In our past advisory conversations, we have heard a lot of positive feedback from people with lived experience about the value of these kinds of programs. For example, in our May Lived Experience video/teleconference meeting, members shared insightful communication strategies that are used between Adult Day Program staff and family care partners/caregivers such as communication binders and living diaries. The purpose of this chat will be to learn more about what’s working well in adult day programs and what barriers may need to be addressed to enhance the programs. 

More specifically, we will be asking the following questions:

1.What elements make an adult day program successful?

2.What barriers or challenges have you faced in accessing adult day programs?

3.What services are not currently offered within adult day programs, but should be?

4.What advice would you give to policy makers to enhance access to or enhance the impact of adult day programs in your community?

What an amazing opportunity this is to share our lived experiences with those who will be planning these kind of programs! We hope you will join us and look forward to your feedback.

 

Kind Regards,

Sharon Osvald, Lived Experience Facilitator (South Eastern Ontario and Behavioural Suppports Ontario)

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June 2017 Lived Experience News

Hello SE Ontario Lived Experience Advisors,

 

Did I mention how proud I am of the work of the SE Ontario Lived Experience Network?  I am very proud! Check out these two additions to dementiacrossroads.ca - “Lived Experience Network Report April 2017” on the Resource Exchange page and “All Chat Topic Summaries Mar 2014- Present” on the chat page. These documents display a great deal of amazing work has happened both this year and since the Lived Experience Network began in 2013. Please have a look and thank you for your involvement exchanging your knowledge and partnering for change.

 

Live Chat Reminder: I also want to remind you of next week’s Live Chat June 6, 2017 – Lived Experience Café Live (Typed) Chat on www.dementiacrossroads.ca from 6:30-8:00PM. (See the attached poster for the topic and details…including our special guest Maia (bluebird). This is going to be a really special chat so I hope you join in. Many of you will be familiar with Maia (Bluebird) from In My Shoes workshops and our online chats. She was our first lived experience advisor to join in 2013 and will be co-facilitating and sharing some of the things that helped her to cope as a wife and care partner of someone living with dementia. Come prepared to learn and to share some of your coping tips and “What Keeps You Going?”

 

And once the storm is over, you won’t remember how you made it through, how you managed to survive. You won’t even be sure whether the storm is really over. But one thing is certain: When you come out of the storm, you won’t be the same person who walked in. That’s what this storm’s all about.” Haruki Murakami

 

Remember, if online “chats” are not for you, you can still participate in answering the attached questions by emailing your  input or by giving me a call at 613-475-9943.

Please sign up for Meet Me in the Middle Lunch – Tuesday, June 27th: We have had some positive responses from people and will be planning to hold a “Meet Me in the Middle” lunch on Tuesday, June 27th at Minos Village Restaurant on 2762 Princess Street, Kingston, Ontario at 12 noon. The goal of this event is to simply meet others (some who you may have met online but not in person) for some conversation and fun. Each person will be responsible to pay for their own lunch. If you would like to come, please email or phone me by: Monday, June 12th.

Also, be sure to check the Ontario page on dementiacrossroads.ca for information about how you can participate in Provincial conversations too. Looking forward to hearing your thoughts and suggestions for change.

Kind Regards,

 

Sharon Osvald
Lived Experience Facilitator (South East & Behavioural Supports Ontario)

Providence Care Seniors Mental Health and Behavioural Support Services
in partnership with the Alzheimer Societies of S.E. Ontario &

BSO Provincial Coordinating Office in partnership with brainXchange

www.dementiacrossroads.ca

Email: sosvald@alzking.com

Exchanging Knowledge, Partnering for Change

 

 

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