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The Lived Experience Cafe chat

Sharing Your Stories, Informing Change

 

Hello Lived Experience Network Member,

 I wanted to thank you for connecting with me and sharing your stories and observations as part of this Lived Experience Network, a collection of people affected by dementia or similar diagnoses in South Eastern Ontario.

The months of October and November have been especially busy and productive for me, with many opportunities to share your stories, input and observations back to the people who provide, design and plan services for seniors and older adults dealing with dementia and similar diagnoses in South Eastern Ontario. Along with sharing the "6 Key Findings” from our lived experience advisory conversations at the Geriatrics 20/20 Conference on October 24th, I have had the privilege of being part of several working groups, sharing your stories (those living the experience of dementia) in the planning and development of a Behavioural Support Transition Unit is in the midst of being designed to provide services for people in need across the entire South East. How exciting it has been to be able to do this! Also, last month 9 of us from the Lived Experience Café Chat  were able to meet "in the middle’ in Kingston for a fun face to face meeting and lunch.

 Looking ahead this month, here is what is happening and what you should know:

  •  Share your thoughts on our discussion boards at www.dementiacrossroads.ca. Be sure especially to see the to see the video under the discussion thread: Heart of Homecare video by Vicky shared by our very own Vicky Willis – a very moving interview where she shares her and her husband’s story of being diagnosed with dementia at the young age of 47!
  • Join us for the next live (typed) chat event on Tuesday, November 25th from 6:30-8PM. This month’s topic comes out of the working groups I have been part of planning the Behavioural Support Transition unit. The questions they have proposed are: "If your spouse/parent needed to go somewhere for several months to receive care, (either in hospital, short term respite, Providence Care, or a special unit treating those living with responsive behaviours), What would be your greatest anxieties? What would keep you up at night? What would you need to know and when? And what would you need to feel really supported – even exceed your expectations?”  To join in the conversation, just before the chat time, sign on to www.dementiacrossroads.ca , click on the chat page and follow the links. I have made every effort to keep this as simple and user friendly as possible. I hope you’ll join in.
  • Our Day Time Chat: There will not be a day-time chat in November simply due to the many working group meetings and the lack of time to meet. The times for the December PM and AM chats will be announced as soon as possible.
  • Be sure to see our Calendar of Events on www.dementiacrossroads.ca . If you know of an event for seniors and older adults in South Eastern Ontario that you’d like me to share, please let me know.
  • Please tell everyone: your clients, friends, colleagues and relatives about the Lived Experience Network and www.dementiacrossroads.ca. I welcome their emails and phone calls. 

I hope to see you in person or online very soon!

Warm Regards,

 Sharon Osvald

Lived Experience Network Coordinator
Providence Care Behavioural Support Services 
in partnership with the Alzheimer Societies of S.E. Ontario
Email:
sosvald@alzking.com
Home office: 613-475-9943

www.dementiacrossroads.ca

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