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June 2016 News

There is a lot happening with The Lived Experience Network and The Lived Experience Cafe in the month of June.

Two "firsts" are:

1. The first Provincial Lived Experience Cafe live chat event will be taking place on Wednesday, June 15th from 6:30- 8:00PM. Now, you can join people with lived experience from across the whole Province as you share your input and suggestions for change. I hope you will join us! For more information visit the Ontario page on this site. 

2. For the first time, the Lived Experience Resource Exchange - a bi-monthly summary, sharing the key findings of all the SE Ontario lived experience conversations (online, phone and face-to-face) - is being shared on this website. By clicking on the Resource Exchange page you can learn what mattered most to older adults and their care partners in our April and May 2016 conversations.

Lived Experience Cafe Live Chat Event: As always, we invite you to participate in the monthly SE Ontario live (typed) chat event on Tuesday, June 7th from 6:30-8:00PM This month’s topic comes from Behavioural Support Services, Providence Care Seniors Mental Health and has also been part of recent Provincial Lived Experience Network discussions:

When caring for an older adult who cannot clearly communicate their needs and feelings, it is essential that health care providers know that person’s history, family stories, life events, as well as traumatic and joyful moments where there is strong emotional connection.

  1. What is a reasonable ask for family/care partner participation when gathering that information? What are you willing to do?
  2. If a standardized tool was created to gather that information – what should it look like?
  3. When is the best time to ask/collect this information from families/care partners?
  4. How do you think this could be shared effectively with health care providers?

Finally, be sure to visit the Calendar of Events to learn whether I am visiting an Alzheimer Society advisory group near you. In June I will be meeting with people in Perth, Brockville, Kingston and Belleville. I'd love to see you there!


Sharon Osvald, Lived Experience Network Coordinator


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